A.D.E.M. diagnosis?

[PANDASmcnuggetsw/fry/coke]

Has anyone here had IVIG on the diagnosis of A.D.E.M.? After reading about it at Dr K's site and elsewhere it sounds more akin to my daughter's situation with the timing and vacinne involvment. If so, did you have an MRI first?

 

Thanks so much,

PANDAS McNuggets w/fry/coke

[nevergiveup]

Demylination is seen on mri's. This is a very serious disease warrants immediate attention. If you suspect this I would see a neuro, treated with 2grams per kilogram of ivig monthly.