might look into lyme

[danddd]

Hi, this is my first post in the lyme topic, my daughter has pandas, and has tested negative a few times for lyme (elisa-i know not reliable). she had ivig, and i am going to see how that works for her, but then i think she should see an llmd if she does not improve. Does anyone know of a pediatric lyme doc in massachusetts? i am going to ask my lyme doc (i have chronic lyme) who he sends kids to also, but it is nice to get a recommendation from a parents perspective.

thanks for any info

[justinekno]

I don't know of a pediatric LLMD in MA, only CT. Have you tried posting on Lymenet.org? You can click on Seeking a Dr and ask for people to send you names via PM.

[mama2alex]

It does sound suspicious for Lyme, and sounds like you know not to rely on the Elisa for any answers. Have you checked her for co-infections yet? We are in CA, so I can't recommend a doctor in MA. Have you asked for a doctor recommendation on the PANDAS forum - seems like there are more people reading it at any given time, and many are looking into Lyme.

[KeithandElizabeth]

I would definitely recommend making an appointment with an LLMD now because they are booking so far out in advance and you can always cancel the appointment. Dr. Horowitz is in New York City and is supposed to be fantastic.

 

Elizabeth