Please PM me, Looking in TX

[amrussell]

Can anyone out there recommend a dr in TX that either treats and/or diagnoses PANDAS? I'm going to my local pedi tomorrow with a handful of information on PANDAS, but I'm not very hopeful. She won't even test my children for gluten intolerance, which I KNOW they both have. I'm worried that my ds7 and dd6 both have PANDAS and it's getting worse everyday. My dd6 has been diagnosed with HFA but I know there is something else going on. I also think I'm the carrier, which makes this even more maddening. With our medical bills so high, traveling out of state is unfortunately not an option for us. I've looked on the previous threads and found some names of drs but no phone numbers or ways to contact them, any help would be appreciated.

[EmersonAilidh]

What part of Texas are you in? I'm in the DFW area.

[amrussell]

We're in Houston but I would travel anywhere in the state. I'm just trying to find a dr that doesn't think I'm completely nuts when I bring up PANDAS. So frustrating!

[lss]

We're in Houston but I would travel anywhere in the state. I'm just trying to find a dr that doesn't think I'm completely nuts when I bring up PANDAS. So frustrating!

 

 

I have sent you a pm.

 

Linda

[amrussell]

I can't thank all of you enough! I'm actually so full of emotion right now. My ds7 has been struggling for months now with tics, OCD, severe tummy issues, eczema, and tantrum behavior. All sudden onset (8 months now), although I believe he's had PANDAS for quite sometime now. As a baby he was allergic to everything (dairy, soy, gluten, eggs, etc), had eczema from head to toe (he was always a greased aquaphor baby), constant sinus infections, severe asthma, chronic bronchitis, croup, strep infections, molluscum, herpes, impetigo, GERD, fungal infections that caused severe hair loss, just to mention a few (we lived in the drs office, and she never once suspected autoimmune problems). Now, all they want to do is diagnose him with TS and just put him on drugs. And I'm not taking that lightly, I will turn every stone to make sure my ds and dd have the proper dx. Mother's know, and I know something isn't right. My dd6 was diagnosed with autism at 2 years old. She presented with failure to thrive, GERD, allergies, strep infections, yeast infections (which the dr called normal, whaa??), constipation issues (which she was put on benefiber and rx laxatives for), just to name a few. Now she's presenting the same issues as my ds7 without the tics. She's terrified of bugs, cartoons, death, blood, tummy aches. Cries uncontrollably when she has to leave me. It's heartbreaking, and I must do something. Thanks to all of you who responded Still crying here, what an emotional ride this is. I'm so grateful for this forum.

 

 

Angela

[EmersonAilidh]

I will PM you after school!!! I promise~