We are brewing...

[mom md]

Thank you for everyone's concern and support. His doctors were not surprised he is having issues. They seem to think we may need it twice a year to keep him at baseline. They are openly honest that they don't know but think it may behave like other autoimmune diseases with periodic flares. They hope with these IVIG treatments his good months will slowly get longer and things may improve at puberty. We have a pediatric infectious disease doctor we are seeing and we can definitely look for other causes. His symtpoms started right around allergy season. Of course, two kids have already had strep in his class (that is the ones we know of at least). We are covering him for a strep infection but I think it does not take much to stimulate his immune system to start him making strep antibodies. His titers are always way off the chart when he flares.

Dr. O ordered the IVIG at 2gm/kg but Dr. C is going to bat also. They said today they will call. I will keep everyone posted. Carter does have immune issues but does not fit in a nice deficiency box. They are using that code too.