Post IVIG abx dosing

[JAG10]

This is a point that our favorite docs are differing upon... and I was hoping to get some feedback in a concise thread.

 

For those who went with the lower prophylactic dose after X number of weeks post IVIG, you increased the abx to full strength when you saw behavioral slippage that you suspected was induced by a,b,c triggers, yes? You held this course for 10-14 days for suspected infection? What if the child was just "reacting" to someone else...still 10-14 days? Is that to "fool" the t-cells into remaining quiet? Did some of you get to the point where you felt it was such a yo-yo exercise you just ended up keeping your child on full-strength?

 

For those who remained on full strength abx post IVIG, what was your recourse when you observed behavioral slippage in your child? I can understand the full strength keeping bacteria away, but what about all the other triggers? Or does the full strength abx simply keep the t-cells quiet no matter what and you never saw behavioral slippage? Did you sometimes just switch to a different full strength abx?

Edited September 27, 2010 by JAG10

[Worried_Dad]

We've kept our son on the treatment dose (1000 mg aug XR bid) since IVIG, because prior experience with the prophylactic dose (500 mg aug daily) wasn't good. Knock on wood, we haven't seen a ramp-up in symptoms since going to the higher dose, which our ds has been on for about a year now.