airial95 Posted September 17, 2010 Report Posted September 17, 2010 I had one of my favorite moments with my son this morning. Each morning, if he's still asleep when it's time to wake him up for school, I crawl into his bed and snuggle up and gently try to wake him up by giving him snuggles and kisses. It's one of my favorite things, because he looks like an angel sleeping, in his semi asleep state he'll snuggle right back up to me, and it's calm - no PANDAS in sight. I think God sends me this special quiet time with my son almost every morning as a reminder of the beautiful gift that he is, and to recharge me and give me the strength to deal with what the day may bring. This morning, it got me to thinking - I'm sure we all have our little moments like this with our PANDAS kids, seemingly simple little things that parents who don't have our challenges would take for granted. Just thought I'd share, and hope it makes someone who might not be having the best day to think about their special moment with their little PANDA and smile.
thereishope Posted September 17, 2010 Report Posted September 17, 2010 (edited) A simple moment I will forever cherish is now being able to hug my son and stroke his hair while hugging him. That in itself is a reminder that he is well. I wasn't able to do that for quite awhile due to contamination, OCD, and sensory issues. Also, even now, when I find myself scratching my nose or cheek from an itch, I find myself automatically stopping and turning slightly towards him to ensure there is no reaction (past contamonation fears). When he goes about his conversation or business without hesitation even though I know for a fact he saw me, make me so darn happy! In my son's first exacerbation when contamination and germ fear was at a high, for some reason the park was "his" spot. He would even put his hands in the dirt there! I'd stand there just happy, knowing he will overcome this somehow. For some reason, that place was his fortress of solitude. We went to the park daily at that time for that reason. However, in exacerbation #2 and #3, the park didn't have it's magic charm:( Edited September 17, 2010 by Vickie
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