Hi all, my son finally got IVIG (40 G so just over 800 mg/kg) a few weeks ago and his tics are way worse. I know it has been a rough full moon too so that might be it but it is so aweful for him, he has had explosive barking/girgling noises for 10 months now and they get worse with the moon but now it is pretty much non stop... immunologist approve to go up to 45 G but he doesn't have knowledge of the HD or PANS. Anyone know where I can find the presentation materials from the last conference and some research. The tics are stressing him so bad his rages are worse too, he is miserable.
anyone have suggestions on what infections to test and treat for for these tics?
deborah