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Found 7 results

  1. Hello! I’m feeling VERY alone because I haven’t seen my doctor at all since BEFORE I was diagnosed and put on an antibiotic! I have been diagnosed with adult PANDAS recently on top of a diagnosis of ADHD, anxiety, hypoglycemia, hypothyroidism, and seizures I began treatment with an an...
  2. Hello, I am very new to the group, my 15 yr. old daughter has been newly diagnosed with PANS after doing the Cunningham Panel along with clinical symptoms. I will share her story another time but I need advice from others; She has been experiencing symptoms for nearly 3 years. I recently found a...
  3. Hello. I am new to this forum. My son is starting on abx treatment this week for Pandas. It was recommended that I log his response. I was wondering if there was a standard or verified tool for tracking symptoms. I am currently using a simple excel sheet and plan to use the Yale OCD scale. Any sugge...
  4. I have been looking at the Gluten Free diet. I would like to know what symptoms it seems to help. I would love to hear any, success stories. I read the one on Jessica on the other forum with Safe Plate Diet. If you did this diet, how long to it take to see any relief with symptoms. Symptoms such as...
  5. If you have had this panel ran, I would like to know what symptoms your child is experiening. My son tested highly likely after his symptoms flared but he has also been diagnosied with another medical condition (POTS). I know some of the symptoms that he has does not belong to POTS and I was trying...
  6. I am asking this question because I am wondering how helpful IVIG or PEX could be? I'm also curious what types of symptoms that your child was experiencing before doing either one of these treatments. My son has memory issues, brain fog, vocal tics, daily headache, scalp pain, tremors, unable t...
  7. Since my ds had a double ear infection last October his scalp pain and hypersenitiviy to touch is unreal. His vocal tics start very strongly when he washes his hair and he is in tears because of the pain. I know this is not normal and his doctors have been told of this problem. My son can also not s...
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