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I recently watched a Joe Rogan podcast where Chris Kresser spoke at length about the Paleo diet, and even described an adolescent patient that had what seemed like PANDAS symptoms, and how he was cured by following this diet. I also recently watched a new documentary called “The Magic Pill”, which claims the Ketogenic diet is a cure to many diseases. Has anyone tried either or both for their PANDAS/PANS child? I’m wondering which is most effective, and which is most practical to follow. My son has an aversion to what he perceives as junk food, so eliminating gluten is not a problem. He won’t eat pizza, bread, breaded foods, chips, pretzels, etc. He will eat ice cream and yogurt, so I’d have to find a replacement. I know both these diets are a huge commitment, but I am extremely interested.
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Hi all. Thank you for this valuable and comforting resource. I've read many of the articles and discussions on the board - along with the book - but couldn't quite recall a certain type of information. Quick background: my 6-yr old son has developed a series of increasing complex and disturbing tics. From sniffing to throat clearing to blinking to head/neck jerks. Sounds very familiar to many postings on this site. We're testing blood and urine through a local environmental physician, are supplementing fish oil (1300 mg) and calcium/magnesium (just low level supplementation at this time), and have removed gluten and dairy from diet as an initial experiment. My son seems to awake with a fair amount of blinking and head/neck jerks ... by the time we're ready to leave for school he's 80% better ... he'll start to get worse just before dinner time and is quite bad by bed time. The house is relatively low stress, minimal tv, no rugs, very clean, unscented everything. Questions for the community: I'm sure our experiences will be quite ranging, but I'm curious as to how quickly you're seeing increased tic levels once exposed to a trigger and how long increased tic-ing usually lasts? Do you see immediate reactions to a trigger? Or does it build over a period of time? If over a period, how long a period have you noticed? hour ... few hours ... days.... ? Is your experience different for environmental triggers as compared to food-related triggers? Once the trigger is removed, do you believe trigger-induced tics decrease over the course of an hour, a few hours, a few days? We're trying to think through potential triggers and all feedback would be most welcome. Thanks. Mark