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Over the years we have treated DD with long-term antibiotics, probiotics, SSRI, levothyroxine, anti-fungal meds, and periodic anti-viral med. Also have done CBT/ERP. Her disabling symptoms are anxiety and beastly OCD. Fatigue is also a factor, but it doesn't get in her way in the same way the OCD does. Thinking we need to reduce inflammation...??? DD16 has shown no noticeable benefit from use of ibuprofen. She showed no noticeable benefit from a trial of CBD oil twice daily for about 5 weeks. She also showed no change during 2 steroid bursts (5 days). Is there any reason to believe that use of steroids over a longer period of time and tapering could benefit her? Are there any clinical or lab indicators that would point us in any direction to reduce inflammation? I read a number of old posts about steroids, but it seems there hasn't always been a distinction between the burst and the taper.
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I have read through some old post and see comments that this is helping. How is Fish oil helping your son or daughter? What dosage is being used. Feel free to pm. My son takes fish oil but not at a high dosage. I tried increasing olive oil levels this last week in his diet and his pain levels and sensitivity levels went way up. So I have backed off. I have found some articles that indicate Fish oil is good for many things and will share what I find. Is there any research on how fish oil affects PANDAS/PANS. I am assuming it affects the brain antibodies, Maybe? I feel like I missed some good information somewhere along this route because of some of the aricles I have found. Any information would be appreciated. Here are some articles about fish oil that I found helpful but none are about treatment for PANDAS/PANS. On the last article you will need to click on MORE under Jacob Teitelbaum. This article does give a dosage. Does anyone use this much? http://www.lef.org/magazine/mag2012/sep2012_Fish-Oils-Health-Benefits_01.htm http://www.drperlmutter.com/grain-brain-seven-super-supplements/ http://www.sharecare.com/health/immune-lymphatic-system-disorders/natural-treatments-for-autoimmune-diseases