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I did previously mention this symptom else where, but thought it deserved special attention as it isn't typically associated with the Classic PANS/PANDAS form, and just because of how dreadful it is... For the past 4 or so years, during an acute exacerbation, one of the first signs of relapse is falling into a transient trance state (or staring spells). The episodes are usually preceded by a 'warning' - an abrupt wave like sensation originating from behind the eyes, resulting in a loss of attention and concentration. Now, here's where the matter gets more complex. My brother has an ASD diagnosis and a clinical history of suspected epilepsy - As a child he suffered a febrile convulsion and a fit, and was rushed to A&E on numerous occasions. After successive investigations involving EEG and a short course of anti-convulsants, the neurologist concluded that the line between ASD and epilepsy was a blurry one and ruled that the abnormalities shown on EGG could be better accounted for by AS. Up until a few years ago, I never experienced any of these worrying spells - the principal symptoms were always restricted food intake, severe anxiety (OCD) with behavioural regression. My PCP will never entertain the idea of epilepsy and I can't say there is a loss of conciousness during these spells - I'm still very aware of my environment. My question is can this be a sign of untreated PANS/PANDAS as new symtoms evolve with every exacerbation, or is it more likely to be psychogenic in nature? The reason why I don't believe it's seizure related is because there is no loss of conciousness, or secondary behaviour, like lip smacking... Whatever it is, it has a dementia like quality to it... very worrying 🙁 Hopefully some of you can relate...
