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Ok, DS14 PANDAS morphed to PANS responded well to azith when younger. Remission for a long while until recurrent sinusitis and monthly flares. Dramatic improvement after discovering probable celiac and going gluten and dairy free. Remission for a year. Then returned with every 6 -10 week flares as of July. MTHFR 1298c homozygous. 23 and me pending. Suspected problem detoxing ammonia. Gut issues: we are gluten/casein free and try to avoid soy and GMO and low sugar. We tend to avoid phenols as well. We are on digestive enzymes. Dysbiosis - and yeast "confirmed" via stool and OAT tests (parasites negative) and we were about to treat but.... PANDAS doc now suspects we have strep in the house via little brother. Little brother has some PANDAS symptoms but doesn't "flare" and has been able to manage and function well. But he does get regular strep throat. Big brother has an ongoing issue with sandpaper cheeks and arms and now trunk. Had previously thought it was keratosis p. Doc wants to treat both boys with Clinda - three times a day X 3 weeks and Rifampin X 1 week. I'm a little nervous to go back on hefty antibiotics for both boys-- scared about gut issues and not sure strep is indeed the culprit in play. And how do you space the probiotics on a three time a day antibiotic?
