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Hello Friends, There is no time or energy to revisit our 4 year history on all the things we have done up to this point. We do know that we have moved from plain ol' PANDAS to PANS for the last year. Our DS14 is doing very well compared to the overnight dysfunction 4 years ago. I was thinking about ordering 23 and me as our next step. DS14 still has OCD, ADD, and also added vocal tics last year with the lovely Coxsackie Virus. His OCD and ADD used to be a 10 on a scale of 1-10, but seems to be manageable at a 2 or 3. So, life is manageable for him and no longer torturous. The tics seem to be getting worse. Here are a few things that stand out: He is never cold and sweats as if he has just climbed out of a pool (NOT exaggerating) Excessive sweat Excessive heat Excessive ear wax Excessive bowl movements (3-4 times a day, but not diarea) His vocal tics seem to be worse during a full moon. He has been tested 3 times for Lyme and yes, with Igenex. He was bitten by a tick 5 years ago and I still have that lingering suspicion. But when all the tests come back negative for Lyme.....could it be a false negative from being on antibiotics? I am suspicious of some type of parasite but he has been tested in the past. Not sure what I should be asking the doctor to test for next. I am going to ask about glutamate as well. Thanks in advance, Linda
