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Hi all, I am new here and this is the first time I've posted... worried and seeking answers. I am pretty certain our DD 10 is coping with PANS and has been for three years now. We live in Ohio and are waiting to schedule an appt. with Dr. Carine to get a confirmation (sent the paperwork yesterday.) Our girl is sick now (or flaring), though, and I am trying to decide if I should wait to see someone at Dr. Carine's office (which could be weeks still) or if I should push it at our own pediatrician's... Have not had much luck getting them to take my concerns seriously so far. They did a strep swab last week and it was negative, but she's complaining of nausea, has diarrhea, a low grade fever, and is crazy pale. Her face also looks swollen to me and she says it hurts. Dark circles under her eyes, also. I hate seeing her feeling so lousy, but if the swab is negative I'm not sure what else to ask for. She presents atypically for strep, and we recently pulled her from school to do HBI after a long bout of school refusal that started with mycoplasma in September. Thanks for any help.
