I am a very recently widowed father of a 11 year old girl who I believe among other things is dealing with PANDAS. I am interested in support/ideas which might speed the treatment of my daughter.
In March her debilitating behaviours / fears / oversensitivities abated while on augmentin 500mg twice day for a positive strep throat culture. I didn't know about PANDAS at that time. Her 6 year history and bad OCD closely matches many of the published criteria for PANDAS. She had been better at the end of March, not so better I would say "all done" but better. However then the 20 day extended course of augmentin 500 finished and I could not get any more for her from her pediatritian. The contact with a pediatric neurologist who knows PANDAS has been made, but nothing sooner than mid May.
I can reason no legal way to restart the antibiotics to relieve my childs pain and suffering. These last 2 weeks without antibiotics she's been steadily loosing the ground she gained. Is my only choice to watch my child suffer until mid May? Perhaps some others have been in this position, hopeful but helpless to help their child...