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My son had Plasmapheresis in early May. Since then the rages and violence have subsided - but still flare up if we try to make him go anywhere - like a doctors appointment. Now he does everything by Skype and basically does not leave the basement. It is not clear to us whether he is calmer because of the plasmapheresis or because we just don't make him do anything - he just sits in the basement playing video games, has not showered or brushed teeth in ages, doesn't leave the basement at all. He he is still very depressed and suicidal, and has anxiety though the roof, but he used to plead with me daily or hourly to let him die and that has decreased to the point that it is pretty rare. It only crops up when he thinks of school - which he has not been to since January and which we have given up on making him go to this month. Dr. L is now recommending Rituxin/Rituximab. We are scheduled for a Georgetown consult on Monday. I am nervous because I have heard that it could make him flare up again - the way they do with IVIG, before starting to get better about 8 weeks after the last treatment. It has only been three and a half months since the plasmapheresis and some people say that can take longer - like 5 - 6 months. I am wondering if we should be waiting a little bit to so the Rituxin - especially if it could cause a flare up which I am not sure I have the stamina for right now. At the same time - if Rituxin is unlikely to make things worse even temporarily and could get him better faster, I can deal with forcing him to the hospital (that will not be easy). We have been told little to nothing about what to expect. Has anyone had experience with Rituxin/Rituximab? Thoughts on waiting or going ahead with this right away?
