Dd6 is PANDAS/Lyme/ Bartonella. We added in rifampin to her abx mix of Azithromycin & Cefnidir (+ Lamisil) about 3 weeks ago at the start of her Spring Break. After 4 doses we had to stop as she had stomach cramps and diarrhea pretty bad. She is tiny - 40 lbs but has a stomach of steel & has only had diarrhea 3-4 times ever. Her dosage was at 150 mg 2x per day. We were also suppose to add Nystatin to the mix also as per Dr. jones. Tried to add the Nystatin in yesterday and within an hour she was doubled over with stomach cramps.
He had us stop both - wait a week and start Rifampin 1x a day along with Florastor. We are on maybe day 9 of that protocol. All along Since starting the Rifampin back up - she has an occasional tummy ache - no diarrhea! However she is experiencing a new level of exhaustion ( typically she is the energizer bunny). We are also seeing behavioral regression, tics(movements & vocal) resurfacing, some OCD compulsions, moodiness, anxiety, and possibly depression. "I wish I was somebody else!"
It's so frustrating! We are not sure if she is herxing from the Rifampin or she has had a strep exposure at school. We are also working hard to control allergies so I am sure that's adding to the mix!! I am going to take her for bloodwork tomorrow but we don't see Dr. B until 4/25. This is also the first time we will see the PA & not Dr. B.? Feeling so frustrated, sad, and worried about my little one.