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My son has been in and on/off flare for almost 3 weeks. I think Allergies is partly to blame. Anyway the past 4 days he wakes up with really bad anxiety and ocd intrusive thoughts. Takes a lot of care to get him out of bed. Whatever pops into his head when he wakes up he argues that its not evil. He is 8 but still likes to watch Backyardigans or phinieas and ferb and he will think about turning on his tv then yell and freak out screaming "its not evil". Nothing has really changed in how I treat his illness that I can think of, this OCD intrusive thoughts are new for him. He literally looks confused then screams, then pupils dilate , he cries not even knowing I'm there then he is out of it. It doesn't last that long but it is clearly like an attack on his bran. It is scaring me and clearly my son is scared which worries me more. So I have literally been giving him breakfast in bed. He gets better after he eats and then will usually get up get ready and have only minor blips along the way. He is on longterm Azithro which keeps him at about 85% well, never had an IVIG and often has to have flagyl to pull him out of flares. Also takes nystatin. But the morning wake up part is awful the past few days. . I give him melatonin right before bed, he is taking allegra for allergies, Ibu if needed before bed, probiotics b4 bed, and I have been doing that routine for awhile and never had this morning fearful waking issue. During the day he has supplements like Vit D, Vit C, Zinc, and multi. Anyone else see this with their child? What do you recommend? Thank you.
