My 12 yrs old son was diagnosed with TS when he was 10 yrs old. He took clonadine in the first few weeks but apparently did not work on him. Then we tried another, i just forgot the name but still did not work. The doctor gave him Orap after that. It worked for him for a year (until Jan 2005). The doctor told us to increased the dosage but it's not working anymore so he told us to take Risperdal if we want to. I said "no" after searching the internet. My son is not taking any medication since then. The tics was on and off (hands shaking, little of vocal, body twitching). Last Sep, 2005, start of school, tics increased (more on body), though he could control it at school but not at home. I tried those supplements like B6, the tics is still there but minimal. Sometimes worse but controllable at school. I let him twitch at home. I found an environmental doctor Nov, 2005 and brought my son. He prescribed my son some supplements at first but my son is already tired of taking vitamins and he told me that he feels better without those supplements even his twitching. Tics is minimal, so we stop. The doctor did some allergy testing after a few weekd. We found that he's allergic to soy, green beans and peanuts. We avoid those things. 3rd week of December, need to visit the doctor as my son's body twitch increased a little bit and now with vocal tics. The doctor started injecting streppyogenal to my son. I noticed that he started to have cheek twitching (left cheek). Then after a week, he gave my son cholestyramine. He will take this every night. This is to remove the toxin in his body according to him though the description of the medication don't say that. The shot (injection) is scheduled every week. After 7 shots (Feb 20, .1cc each shots, my son had cheek twitching (left and right), the skin in his lower eyes were dark, no problem on sleeping though. He cannot eat without spilling his food. When the cheek twitch, he tends to scratch it. He cannot speak continuously because of the vocal tics and he will forget what he wants to say. Good thing it's vacation this week. My husband brought him to the doctor Feb 21 because he's getting worse. The doctor told him to stop the shot and see him after 2 weeks. It seems the dosage was not right acording to the doctor. He did another allergy testing to know the right dosage of the shot. And he's asking for another blood test. He was tested last Dec for mold and they found moderate mold in his blood. Our house was also tested for mold but negative. I do not know the doctor but my husband is starting to think of going to another doctor. I don't like to do it because this is already our second doctor, the first was a Neurologist who just prescribe medication to control the tics. As much as possible, i don't like my son to take any medication because of the side effects. I do not know what to do now... continue with the current environmental/pediatrics doctor or go to another doctor. Can you give me an idea how your child was treated by your doctor? I just want to know if my current doctor is doing it right. I want to try bonnie's supplement or other supplements again but i do not know whether i could give it to him while my son is being treated by a doctor. Sorry for my very long letter.. i just feel hopeless right now...
