libbykt

I am not impressed with the therapist my son has been seeing for the past few weeks, so I was looking into more intensive OCD treatment programs. There aren't any near me, so I'll have to travel, and willing to go anywhere for good results. My son's symptoms are mild compared to others that I have read about, but it's bad enough that it's affecting his ability to enjoy school and other activities because he is so worried about everything he sees. I still don't know for sure if it's PANDAS, and I am waiting on results from another strep test, but I also don't want to sit around and watch my little guy get worse week over week. I'm currently looking into Dr. Storch at USF and the Mayo Clinic, but I'm open to all suggestions. I'm in Texas, and the Austin OCD center JUST this week stopped treating children as their child therapist left the center. Just wondering if anyone has been there/done that?

Trying to figure out what's going on with my son. He had a bunch of blood work done, and everything came back negative. I don't understand enough about the Lyme test to know what they tested, but I do know how inaccurate they can be. His was a combined IgG and IgM test for the c6 peptide, and is considered negative with .17 (anything less than .90). There is not one LLMD in this great state of Texas, so honestly, it would be just as easy to fly to Palo Alto for a few days and go to the lab directly and get the test (my husband works in CA during the week and I'm sure would appreciate us coming out there for a change!) So of course I will call them when they open, but I was just wondering if it's possible to just walk in without doctors orders, pay out of pocket, and request a test? Has anyone done it? Thanks!

Hi there, I am just beginning to explore whether my son could have Lyme disease, and I have what I think is a very basic question. We thought he has PANDAS, and still might think so, but I don't want to rule out Lyme as we spent several weeks in New England before these symptoms appeared. So my son was on clindamycin for a week, treating strep, before we had the blood test done last night for Lyme. Can the antibiotics affect whether the antibodies will appear in the blood test? Also, does anyone know of a doctor in Austin, or anywhere in Texas, that specializes in Lyme?

Sorry - kindergartners do not spin and fear grass poisoning because they're having trouble adjusting to school. I should clarify- I do realize that everything else is not normal- I was just hoping that the spinning, specifically, and the walking backwards is just him having fun. Although he walked backwards across the parking lot into school this morning, and I know the school is "dirty" so I need to track this to see if there is a connection. Thank you both for such quick responses. I am in Austin, TX, and unfortunately there doesn't seem to be much info around here. I called the Neurosensory Center that was recommended, but they need to see blood tests first. I am waiting for a call back from the Austin OCD center in hopes to find a therapist who can at least help us with CBT while waiting on the lab results to see where to go next. I am hoping to get some info by Friday, when his current antibiotic course is over, so we can maybe start a new one. I am not opposed to changing them, but I am terrified of him being on them needlessly though, since he is allergic to penicillin, and there are so few that we can use. I will look into the azithromicin- I don't think we've ever tried that one. We have been off the Singulair for about 10 days and his symptoms are getting worse, not better. I definitely want to try everything before SSRIs. I never suspected Lyme until yesterday, and then looked into it a little bit. We went to Maine for 3 weeks, and then the symptoms started 2 weeks after we got back, so I suppose it's possible. He has been complaining about his hands and feet hurting, and I don't know if that's real or in his head. And it makes me so sad that I have to wonder. I didn't realize that about the Ibuprofin, so I will try that today. If anyone has a PANDAS doc anywhere in Texas, please let me know! My husband also works in San Francisco during the week, so it wouldn't be hard to travel there. Thank you!!

Almost 3 weeks ago, my 5 year old son, clear out of the blue, had a complete breakdown over fear of poison from a little piece of grass on the carpet. Over the next week, he started having more and more fears/obsessions. Major separation anxiety. Anger issues. Spinning and walking backwards started yesterday, which I am praying is just 5 year old weirdness, but am afraid it might be more. I immediately took him off Singulair, thinking it could be his allergy meds, with no improvement. His pediatrician mentioned PANDAS, and recommended a strep test even though he had no symptoms. His rapid was positive for strep, so we were put on 10 days of clindamycin and 4 days rifampin. He is allergic to penicillin. We started the rifampin today, and the doctor called to say we could stop the antibiotics because his strep culture was negative, and his symptoms haven't improved so he recommended we go to a therapist because he was probably having a hard time adjusting to kindergarten. I asked about strep titers, and he agreed to doing a blood test. I asked about Lyme (thankfully I had seen that somewhere on this board or another!) or thyroid or anything else that could possibly be causing this, so we had his blood drawn and they will be testing for those, plus lead, copper and numerous others. I am keeping him on the antibiotics until he finishes the course on Friday. My question is, where do I go from here? A therapist, to help him deal with his fears? Immunologist when I get the blood tests back? A new pediatrician? I thought I was lucky in finding a ped who actually knew about PANDAS, and supposedly had treated patients previously, but I feel like I already know more than he does. And I don't know much. I do know this could be just random, but my gut is telling me that there is a reason that this is happening. Sorry if this is jumbled. Not much sleep the last few weeks.