connticks

Thank you everyone for the replies. It has been an especially difficult time with my daughter over the past week; I am not sure why, but she has been truly defiant and rotten, for lack of a better word. She also will start to cry and say "I feel sick, Mommy," and this just breaks my heart because she clearly IS sick. LLM - I am actually in NY, but my screen name is "Connticks" because it was Connecticut ticks that gave me Lyme and coinfections many years ago (and I passed these on to my kids). My LLMD is wonderful but she is very careful with prescriptions because she treats kids with lyme much like Dr. J does, and she has had red flags go up several times with the insurance companies for how she treated lyme patients. It is horrible how these doctors cannot treat patients properly without fear of losing their licenses. I do believe my daughter has Bartonella also as I know her symptoms match with bart, and she has had skin rashes randomly and bart "streaks" in the past. Thank you for your help, I really can't tell you how helpful it was.

My 7 year old daughter has Lyme and is being treated by my LLMD. In addition, her last blood test showed a high ASO and my LLMD said that means she could additionally have PANDAS. She felt like she could justify the LYME treatment more now due to the PANDAS because perhaps the insurance companies will not question the long term antibiotics? I am not sure I understand exactly. We go back this week for a follow up but in the meantime I am trying to figure out how PANDAS is treated. My daughter's symptoms are mostly related to her mood. She is VERY difficult; she has tantrums like a 2 year old; she is almost impossible to reason with about anything; she is soooo defiant; she is generally in a bad mood, unless she is doing something she loves, like swimming or playing with a friend. Her behaviors make each day a challenge. However, once in school she is fine, she excels there and her teachers insist that she has excellent behavior. She has been this way for as long as I can remember. She has had motor tics recently which change in sound every few weeks. She whines more than any kid I know. She can be downright MEAN to me and her siblings. I put her in time out when she needs it, which results in her wreaking havoc in her room and ending up with a headache from crying so much. She can be very sweet and adorable but these behaviors make it so stressful. I know they are NOT in her control and I feel so bad for her. I believe she definately has LYME and perhaps the moods are related to this or to a coinfection. But now that I have learned some about PANDAS, she seems to show PANDAS symptoms too. How is PANDAS treated? What can I do to make each day easier? I would appreciate any feedback from someone who can relate to this. Thanks,