ZJsmom

Have any of your kids had neuropsych evals? If so, what is involved? Are there PANDAS-knowledgable neuropsychologists? My son is 13, and hasn't spoken a word in 10 months. We've seen many specialists, and have several possible diagnoses. This is the most recent test that has been suggested. Thanks for your help.

We used apple cider vinegar for my 11 year old son's warts. Soak a little piece of gauze with vinegar and apply to the wart with a bandaid to hold it at night. In a few days it turns black and usually falls off within a week. It works every time for him.

What great news-it's so nice to see these stories! Congratulations to you and your son!!

Thank you so much for all your responses! They are so helpful. My gut feeling is that it is PANDAS, but we're pursuing everything... Is the neurologist you're referring to Dr L in Maryland? Sydne

Thanks for your responses. This is all so overwheming. PhillyMom- Yes he does read and write, and communicates through writing notes, but says it's harder to focus and concentrate since starting the antibiotics. He's not attending school right now, but his cognitive function is still good. T.Mom-We're thinking the not speaking is OCD behavior too. He doesn't really show any other specific OCD symptoms, but he does wash his hands a lot and has issues about cleanliness. He's only been on antibiotics about a week, but I haven't seen much change; if anything, it seems a bit worse, and he definitely feels worse physically. SFMom-He's not seeing Dr J, but my husband is going to see him next month. My son is seeing Dr S in DC, who is a nurse practitioner, who was practicing in California but recently moved her practice to DC.

Hi, I'm new here, but PM'd a couple of members privately and got some wonderful information. Now I thought I'd throw it out to the group. My son just turned 13. In February, 2008 he had a cold/sore throat and headache, and stopped speaking. He saw a neurologist who put him on neurontin, and his speech came back in a couple of weeks. He had a similar episode in 2010, and another in March of this year, except this time his voice has not come back. He had a terrible headache for several months, and some sleeping issues which seems to be under control now. The pediatrician initially did a throat culture which was negative for strep, and he has had an MRI, seen an allergist and neurologist, and his pediatrician, who say that it is all psychological. My husband and younger son both have lyme, so he has seen an LLMD, and the Igenex tests are negative for lyme, but slightly equivocal for bartonella and babesia, so he was put on Rifampin, Azithromycin, and Mepron. (I haven't started the Mepron yet, - he doesn't seem to have any symptoms of babesia, and we wanted to make sure he's not allergic to the first 2). His mycoplasma pneumoniae IgG abs came back at 608u/ml, (normal is 0-99), but his IgM abs was normal. A counselor thinks it might be related to PANDAS and/or lyme. Has anyone else had similar symptoms, or suggestions? Thanks so much!