momonamission

Thanks for your reply Chemar. I greatly appreciate any and all knowledge I can obtain. I am feeling quite overwhelmed right now, like I'm sure most parents do when beginning this journey. You are absolutely right. From what I have read he is at the right age, and he has had allot of stress and excitement recently. I had not heard of PANDAS until today while reading on this forum. Had I known, I would have requested the strep culture. During the visit for the virus, the doctor listens to his lungs, and decided he just needed some antiboitics and did not do the strep test. Strangely enough, it was this same visit that I requested the referal to the neurologist for the mild tics, the same day that I began him on the amoxicillan, and the same evening the tics magnified by 1000! I was assuming it might be the medicine that triggerred it. Does this mean that once it is out of his system the really bad tics will stop. Also, does the PANDAS go away when the virus, or strep if any, goes away. I don't know if you can answer that, but you seem a step ahead of me. Maybe I can research the Pandas more. You are so right about the docs putting him on meds right away. His first appointment was last Thursday in which he was put of the amoxicillian. The tics go so bad, that I made him an appointment the following Monday for his regular Pediatrician to see him. The doc placed a phone call to a Neuro (who we have never seen) and came back in the room and prescribed my son Resperdal without the Neuro ever seeing him. This shocked me, and I turned down the prescription. I was even more shocked when I researched the med and saw what they wanted to put my son on. This seems like a scary battle in which knowledge is the key. Thanks so much for your advice!

Hello all. Wow, it's comforting to find so many people share the same task I have just been dealt. After 5 years of denying my son's small tics, I have finally confirmed there is a problem. He is 12 now. The small tics (grunting, sniffing, tapping, throat clearing, hopping, etc..) would go away throughout the years as quickly as they would appear. They were soon replaced by another that we would all overlook. I really believed he could control them up until this point. He is incredibly bright (last report card was all 100's with one 94). He started 6th grade this year with his normal little tics that obviously were suppressed while in school. For some crazy reason, within the last week, our family has been blown away by the increase in tics which undeniably at this point is beyond his control. As of last week he began changing the pitch in his voice while in casual conversation to shouting. And every few minutes, shouting for no apparent reason. He is even shouting something sounding very similar to "fuckju." My heart is breaking for him, and he is so frustrated. I even recieved a call from his teacher and it appears to be happening at school in moderation. He has had such a great self esteem up until this point, and I don't want that to be tarnished by how cruel middle school can be. I think it has been magnified by a few recent events that have triggered what has been there for the last five years. He is a little stressed out with the usual school stuff. I got married two weeks ago, which was a happy event, but still stressful for everyone. He gained a step father around the same time his dad seems to be "too busy" all of the time. I'm sure he is a little confused. The most unusual and probably significant factor might be his latest doctor's visit. Exactly one week ago I took him to the doctor to be treated for a viral infection and a congested cough. I also spoke with the doctor about a Neurologist referal due to the recent profanity resembling outburst. The doctor put him on amoxicilan (I don't know if I spelled that right.) Within the evening the shouting went from 0 to 60. I know it has something to do with the antibiotics. I have stopped them, and am waiting for it to get a little better. I refuse to put him on medication that sedates him and just covers the problem. Where did you all start. Thanks for listening. Mom on a mission