elykoj

i dont understand what PANDAS has to do with Lyme disease ?

an infectious disease doctor basically said my 5 year old is a strep carrier. she is asymptomatic of any symptoms of typical strep . her Anti-Strepolysin O COUNT WAS 255. does not think its PANDAS at all. 3 Doctors now believe my daughters sudden 45 minute long tantrums are just a very strong willed little girl. she has been this way since before 2 years old.

We are getting an appt to a neurologist soon. i will go through the checklist and see how many of those i think she has. autoimmune is VERY prevelent in our families. my wife sade all have thyroid issues, and my side all has colitis and crohns. i actually had my colon removed 3 years ago due to long term colitis which ended up showing low grade dysplasia. so i have a j-pouch right now. and i am still being monitored to see if i have lupus. they dont think so, but dont know for sure? ok i went through the list... i only checked off 3-4 things on that list and they were minor things really.

a doctor that does not take health insurance? confused?

My wife had appt.with my daughter at a child psychologist today, and she was somewhat familiar with PANDAS, but after talking to my wife then daughter for an hour and a half she tends to think that she is just a strong willed girl who wants it the way she wants it when she wants it. we have a bunch of papers we need to give to the daycare and ourselves to fill out while observing her. she is not saying no, but she needs more info first. in that list thats pasted above, my daughter maybe has 3 of those.

question? i am confused again. if i child is just a typical whiny strong willed girl and throws tantrums that are doozies, and her Anti-Streptolysin O is 255, does that necessarily mean PANDAS ? doesnt the high score on test just indicate a recent strep infection ? i am sure there are kids with mood issues and maybe just brats that have had untreated strep, does that mean they have PANDAS ? SORRY but i am confused?

we are being referred to a pediatric neurologist in the Cleveland Ohio area. Anyone know of one who specializes in PANDAS? figured there might be one at the Cleveland Clinic but dont know ?

history of my daughter and then some questions: 5 years old. she is asymptomatic of typical strep signs. never has fever or sore throught. only way we suspected it her cheeks get rosey,her vaginal area gets red,and she gets somewhat emotional when she doesnt get her way with tantrums that last sometimes 45 minutes.sometimes her swabs were positive and sometimes negative. if positive treated for 10 days. This has been the case since she was 2 1/2. Last year she had her tonsils and adnoids removed due to far to many strep infections. In the recent weeks there has been a few strep cases at her daycare so my wife insisted on getting the Anti-Streptolysin O test.normal range is 0-125. my daughter was 255. they suspect PANDAS because of the behavior and this test and want us to see a Pediatric Neurologist to get checked out. 1. Does this sound consistant with Pandas?,or maybe. my daughter is very strong willed like my wife,and when she does not get her way she acts out big time, but if we gave in to her,i dont think we would see those tantrums because in times we have said ok to her once the tantrum starts, she immediatly stops crying and carrying on. 2. Secondly, how do we know when she gets a strep infection to treat it, if she asymptomatic? 3. I am confused by the range her score was in? if normal is between 0-125, if she was within this range does that mean she has not had a recent strep infection? or if its over that score that determines the recent infection? 4. I am also confused with the antibiotic use if it is PANDAS?, how can someone stay on antibiotics for several years until they reach puberty? I thought doctors dont want to prescribe too many because of tolerance to the body and them stop working. ?Also what about C-DIFF infections? over use of antibiotics i thought caused this? I had it a few years ago in the hospital from antibiotics for several weeks. 5. Can PANDAS cause heart trouble? and is that just if not treated with antibiotics? I am concerned with this issue because my youngest daughter who is 4, is also asymptomatic with strep, has Mosaic Turners Syndrome and her only issue with that at this time is a bicuspid aortic valve. She is in great health and is monitored every other year by a pediatric cardiologist with no restrictions. she has not been tested with the Anti-Streptolysin O but we are thinking of getting her tested now. she is predisposed to NLD, NON VERBAL LEARNING DISABILITY, thanks for any info you can provide to me.