Jennifha

We are between Lansing and Grand Rapids, but traveling to Ann Arbor or Detroit area wouldn't be a big deal. Thanks for the info.

Dr. Chugani's wife is doing a research study for children with Autism using PET scans and Buspar. It isn't specifically for PANDAS, but I sent an email inquiring about participating anyway. I wonder if this would be a chance to get a free PET scan that could be used by other doctors to look for seizures or PANDAS. I don't think my BCBS will cover a PET scan. I remember when I was trying to get a SPECT scan covered (the business closed before I got it done). You had to get imaging pre-approved and the reasons were pretty restrictive. Does anyone know much about PET? Are they all the same or would if have to be more specific if you are looking for something like PANDAS?

I have two sons with Autism. My oldest is 6 and I have suspected PANDAS for a while. He wasn't stimmy as a young child. I didn't start until around 4 and then it was very intense stimming. He gets better on steriods and antibiotics (especially Zitrhomyacin). My almost 4 year old is also diagnosed with Autism. He started an eye blinking tic this weekend very suddenly. He blinks extra hard, for extra long, then opens his eyes a little bit wider than usual. It happens very frequently. Not every blink, but probably most. We don't currently have a DAN. I have no idea where to take him for treatment. I probably will start with the family doc, but honestly I think that they will be clueless. I am hoping to be able to go there with a request for a referral. Are there any neurologists in the Michigan area (including surrounding states) who are familiar with PANDAS?