CindyD

My daughter is 9 years old. She has ADHD, ODD, Anxiety Disorder, Tourettes Syndrome, Bipolar Disorder and night terrors. She was put on Strattera, Adderall, Clonidine, Melatonin and Imipramine for her problems. The Imapramine is for her night terrors. Oh and she also has insomnia so before all the medications she never had a good nights sleep because most of the time she just didn't and when she did she had these aweful night terrors. On top of that starting at 3 months old she had uncontrollable vomiting and no matter what testing was done we could never find a reason. No medications helped. She had been on Reglin, Liquid Zantag and Liquid Prevacid adult doses and still continued to vomit until a new doctor discovered she has a nerve problem in her rectum that does not allow her to have bowel movements. It was okay until she hit 3 months since as an infant bowels are soft but once they firmed the problems began then she had mild relief as she got strong enough to push it through anyways but she was causing herself to cry and other issues. Now she is on Miralx and the problem with vomiting and no bowel movements has gotten better. We spent years with no doctors listening despite us telling them she only had a bowel movement maybe once a week and barely ate anything. She only weighed 36lbs at age 5 and still at 9 has not broke 60lbs despite being 52 inches tall. Anyways even with the meds her night terrors started again so her doctor upped her dosage about 4 days ago and now she is having muscle spasms while she is sleeping. They are so severe she nearly fell out of bed and now sleeps in my moms bed as I sleep on a much smaller bed. We do this for fear that she will have something happen due to these spasms and be injured also with the night terrors she has before gotten out of bed and walked around the house. She has even climbed on things in her night terrors crying as if trying to get away from something. I don't know if these new spasms are from the night terrors or her tourettes or if it is a side effect of her medications. I have tried online and found no link to the spasms to any of her medications so I don't know what to do. If we take away the meds she may revert to the night terrors and not sleeping and become ill again or injured but if they stay she may be injured as well. We have been trying to figure out the best way to help her have as normal a life as possible since she was an infant and it seems we still have not succeeded.