Ihave asked our PANDAS doc about NMDAR encephalitis, as I thought it was a real possibility for my daughter. THe PANDAS doc said that my child would be physically much worse. I think she meant walking, talking, that kind of thing. Does anyone know if this condition does not always progress or can it kind of plateau at a certain level of disability? I uess I am asking,is it always physically disabling? My child is disabled by OCD and was disabled by psychosis at times and was severely affected by chorea-like movement.
She just had IVIg,but I still want her tested the next time we get labs.
