bcbmommy

Thank you!! I will check out that forum. There is a history of OCD on my side of the family (myself & possibly my mother), but not sure about Tourettes. Actually, I still battle my OCD and I'm 38. It really seems to be at a high right now, but I've been reading that Wellbutrin (which I am on) can exacerbate that. I'm pregnant, and that is the only drug that is safe for me to take for my depression. I've also wondered if it's increased just because I'm so stressed about my son's issues.

Ozimum, May I ask what state you're in? I would love to find a doctor like the one you have, but we're in the middle of Kansas. Wichita is 2 hours away, so that would be no problem at all if I could find one there. And our Pediatric Neurologist is in Denver.... Honestly, I'd pretty much go anywhere to find a wonderful doctor!

When he first started Orap last year, it helped tremendously. It was like a miracle drug. It doesn't seem to be helping much at all now, however. I've read a little about PANDAS, but I will be honest with you....yes, he has had strep and other infections in the past, but with 3 children I couldn't pinpoint the date of all his illnesses. Should I contact his Pediatrician and have her make a copy of his chart for me? Will they do that? I'm so desperate to get rid of these obsessive thoughts he's having. Yesterday he told me that sometimes he just wants to die. Thank you much! Heather

Hi Leslie, I haven't had him tested yet, but I'm going to talk to his doctor about that on Thursday. My daughter is on Topamax for her headaches, but I didn't realize that was also a medication for Tourettes. I'll have to look into that. Thank you!! Heather

My 11-year-old son has Tourettes/OCD/ADD and is currently on Orap for Tourettes. We were noticing an increase of his tics and OCD behaviors a few months ago, so his Neurologist increased his Orap from 2 mg to 3 or 4 mg. We initially increased to 3, but saw no difference, so moved up to 4. Honestly, I'm wanting to take him off of Orap, but I'm nervous it will get even worse. Yesterday was our first day on a gluten-free diet, but now I'm wondering....should I stop the Orap first? We've also started giving him Natural Calm in the evenings, and epsom salt baths. I think what I'm noticing more than anything right now is an increase in his OCD behaviors. He has tremendous guilt about things that he shouldn't have guilt about, like looking at a picture of a girl in a bikini, etc. He is constantly telling me he's sorry, constantly saying "I love you, Mom". I started homeschooling him in November, and to be honest, I have to wonder if that is partially to blame for the increase in symptoms. He's also become very clingy to me. I feel like this has consumed my life, and I'm willing to do anything to make him better. Sometimes, however, I feel like I'm spinning my wheels! I'm supposed to meet with his Pediatrician on Thursday to discuss the medication Intuniv, but there's something that's holding me back from wanting to add another prescription to his life. Thanks for listening. Heather