Undiagnosed for 10years: My son, age 4, and daughter, age 14, both got sick August 1999. We lost Steven to raging, unpredictable fight/flight, clothing sensitivities, night terrors, bedwetting,dysgraphia, dyslexia, etc. Lauren went from being a teenage social butterfly to anxiety ridden and obsessive. They went undiagnosed until December 2009. My son, DNase 2720, then 14, responded well to abx then had IVIG in January 2010. IVIG brought Steven--himself--his personality--the funny, adventuresome, kind Steven came home after 10 years. Suddenly, Steven could write, read, read social ques. In May 2010, Steven scored the highest math schore in the school and in the 80th percentile in Reading!--he was still a special ed student. Steven, who was expelled from kindergarten, had a 1:1 aide at school until then, is now is an honor roll student--learning to drive, doing team sports, doing normal social teenager stuff. We are so very grateful.
So, what about my daughter, now 25? ASO 743, DNase 1780. She is finally on abx but has not responded as well. Desperately looking for info on PANDAS adults. Lauren is uninsured so we have to make good choices on the med services cause mom is paying. Can anybody point me in the right direction?
