jj notts

Hi I am so glad I have come across your message. My daughter is also 5 and she has the same severe issues with clothes especially knickers and socks. Leaving the house can be so problematic. She has one old dress she wears for bed and one to go out in. Everything else is unbearable for her. The issues started last Feb when my daughter woke up with what we thought were night terrors and by April she had what we considered full on OCD where she was hand washing, kissing things, ordering things and many more classic OCD rituals. We are currently seeing a therapist at Camhs once a month who advise us she is too young for CBT and no drugs are given in the UK till age 16. They have not diagnosed OCD and seem to be reluctant and lacking in knowledge to deal with it at such a young age. Basically we get to chat over whats going on and they tell us how to manage the situation (as if its a behaviour problem) which it is far from not. We also have touching things, issues with eating and palpitations when she is a really anxious state. She is also very abusive, has mood swings and outbursts. Social situations can be very tricky and embarassing. PANDAS has been mentioned to me a few times on forums as it came on quite suddenly and we have peaks where its out of control and then dies down. She also came home with wet knickers and was constanly going to the loo when it first started which is another sign I believe. I am wondering how you have got on with your daughter and if you have found any help. We have made an appointment with the paediatrician. My GP didn't know what Pandas was! I wondered if there is anybody that knows a Pandas specialist in the UK or how we can get tested. We are happy to go private. My daughter used to be an ultra confident and happy little girl who has changed into a very anxious/abusive little girl full of worries. Its heartbreaking.