momwithtwins

Does anyone know if reoccuring episodes ALWAYS include a tic (in our case)with the behavioral changes? I have a 4 year old who has a tic (which made us recognize there was a problem) and exaggerated behaviorial issues. But recognizing a future PANDAS episode based only on behavioral changes is really hard...especially with a 4 year old. So, does the tic typically accompany the other symptoms? Worried I won't recognize a flare up.

Ladies Thank you so much for your quick feedback. We were lucky to catch it early (only because my husband is in the medical field and happen to mention the tic to a collague who suggested a strep test..which came back positive) I have twins, so the behavioral issues have been the hardest. So, much of what he does can seem like a "phase" but it is exaggerated. He has meltdowns if you look at him the wrong way! I'm in NY, so if anyone has any recommendations on docs, I'd love to here. Also, how do you know the type of specialist that's best to see? We've seen the psychiatrist (not very helpful) and the next on our list is the CT immunologist. thanks again ladies. PS- my son did have a flu shot 3 weeks prior to his diagnosis. don't know if there's a corrolation.

Hi, My 4 year old son has been diagnosed with PANDAS by 1 specialist. After a brief period on antibiotics his symptoms (tic and behavioral changes) have gotten substantially better. My question is: He's only had 1 episode, how likely is it that it won't return? And do we continue moving forward and seeing other specialists if he's only had it this 1 time? He has only had his titers checked (no results yet) no other tests have been done. appreciate any feedback! darlene