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wiz_ace

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Everything posted by wiz_ace

  1. Hi Claire and Chemar! I actually have been reading this discussion board for quite some time now, looking for solutions. It is Chemar's list of vitamins that got us interested in trying this method, although we didn't begin until the tics were very severe. We've been on the Bonnie G program since Jan. 4, and the tics I described above are still there. He doesn't have any food allergies, although we just found that he has an aversion to chocolate, which he doesn't like to eat anyway. I don't know how long to wait to see improvement with the vitamins, but I did read that some people took 2-3 months to see a change (with a little bit of tailoring the vitamin amounts). I don't mind making him take the vitamins as it really can only do him good. We tried the "no screens" and saw only a slight improvement (We did this for about 2 1/2 weeks). The neurologist says that the tics are going to be the worst between the ages of 10-11, and he just happened to turn 10 on the 3rd. He is also against medicating, until we get to the point where the tics become debilitating and as a last resort. I think we are at the last resort, and so that's why we are seriously considering the Orap. I am just hoping that we only have to be on it for a short period of time, until maybe his hormones slow down a bit, as it seems to us that this is the main cause of the onset of the severe tics. In any case, do you two have any advice as to what to do about the stares in public? It's a vicious cycle for him because the more people stare, the worst his tics seem to get, and like I said, they are already very noticeable. Any suggestions would be greatly appreciated.
  2. Diane, Thanks for the support . Unfortunately, my son's tics are much more than the tics most other kids with TS can hide. He stomps while he is walking and hits himself in the chest, while making a loud, gruntlike vocal tic. I think if he had just one of those tics at a time, it wouldn't be a big deal. But it's very noticeable and frequent enough to cause the stares. We've tried lots of methods to get them to a more manageable level, but nothing seems to be working for us. I am considering getting him on Orap, though I wish I didn't have to. Anyway, that's my story thus far.
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