momkat

sorry you are here... there is a mom in another country trying to get ivig for her 19 year old daughter.... and someone just posted they did ivig for their 18-19 old going to college and things look good... my child is young... i am not sure if the onset was as child, that any titers or camk would come up... for kids as they get older it seems that once it's triggered, you may clean up the infection/cause but the body remains in overdrive...so now the quest is to get the body to slow down.... basic starter test list... lymes igenex aso antDNAse mycoplamsa pneuamiae igg/igm and on personal note,,,since i never got my ds to clear completely...his allergies sent him into his worst episode ever this last spring...and we have just recently started to see some recovery...long road maybe some others will come in with some thoughts PS i believe my dh has pandas and tics less on abx(stiil gets strep1-3x a year)....he has never been on long enough...ie 6months or better, is what i think would just maybe put a real dent in it pss..forgot dh has high/above normal antidnase...could be from constant infections Thanks for your reply. I am struggling to get a handle on the terms and acronyms, but am learning.

Thank you for your reply, emmalily. Were you diagnosed as a child or later on? I don't even know if I could convince my son to look into this, at this point. His issues that remain are more neurological-bits of compulsive behavior, anxiety, social phoboa, etc., etc. Thanks for any advice you might have.

sorry you are here... there is a mom in another country trying to get ivig for her 19 year old daughter.... and someone just posted they did ivig for their 18-19 old going to college and things look good... my child is young... i am not sure if the onset was as child, that any titers or camk would come up... for kids as they get older it seems that once it's triggered, you may clean up the infection/cause but the body remains in overdrive...so now the quest is to get the body to slow down.... basic starter test list... lymes igenex aso antDNAse mycoplamsa pneuamiae igg/igm and on personal note,,,since i never got my ds to clear completely...his allergies sent him into his worst episode ever this last spring...and we have just recently started to see some recovery...long road maybe some others will come in with some thoughts PS i believe my dh has pandas and tics less on abx(stiil gets strep1-3x a year)....he has never been on long enough...ie 6months or better, is what i think would just maybe put a real dent in it pss..forgot dh has high/above normal antidnase...could be from constant infections

I am new to this site and am looking for advice regarding my 22 year old son who I believe had PANDAS as a child and was never diagnosed. He woul have met a great deal of the the criteria and has some residual issues. Looking for direction.....or someone with a similar circumstance.