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Eddie

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  1. Buster. Yes, it was Antidnase B. My daughter "may be" showing slight signs of OCD. We are not sure if it is to be like her brother or we actually has it. We have not seen anything but she tells us that sometimes she has to do things so she has OCD. On another note, My son still has OCD and ADHD behavior but it was nothing like before. We are about 10 months from our first IVIG and 7 months from our second. We are being patient but still figuring out our next steps. You may recall, we spoke for a while right after your daughter got IVIG the first time and before my son was going into see the same DR. you gave us some advise on the protocol and what to keep an eye on. We are considering a Prendnisolne burst for 5 days and upping the Abx with my son and a 30 day supply for my daughter just to hedge our bets.
  2. So our son was diagnosed with PANDAS through DR's, Cunninghams test (he was really high) and ASO/Anti DNA Titers. 5/5/09 Anti DNA 680, ASO 574 Today Anti DNA 240, ASO 347 Aug 2009 IVIG 2 days per protocol 500mg Azyth for 2 months and 250mg over the year No the surprise. We were worried if our daughter, wife and I are carriers so we had the same tests done My wife was in normal range My daughter was Anti DNA 680, ASO 141 What does not make sense is that she has not been sick since Jan. In Jan she had a caught and "cold Urticarial" where she developed a rash when it was cold or when toughing ice. How could her Anti DNA be so high when here ASO is normal? Is this an autoimmune reaction? Here is my question: Does that mean that we are about to have Pandas 2.0? Is this the right amount of drop with 2 IVIG treatments and ABX or is it faster or slower than normal? Should my daughter be on abx? Thoughts?
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