MarkH

What about Azithromycin?

All else being equal, what antibiotic appears to be the first choice among PANDAS knowledgeable doctors?

Hi, We did the whole UW Neuro thing awhile back resulting in complex motor tic diagnosis for both boys - motor issues were the primary symptom. The psych issues presented later (or at least that's when we noticed - the motor issues were very severe!) We have a new Ped Dr here in Silverdale who is willing to work with us and start antibiotics - in parallel going to Immunology Dr to cover the total autoimmune issue. Essentially I'm the lead Dr for our boys and working with Doctors willing to work in parallel.

I have an Immunologist visit for my two boys next week as I continue to strive to determine the source(s) of their symptoms. Does anyone have test recommendations an Immunologist performs above what would be considered routine? IOW, anything specific to PANDAS/PITAND, etc…? Any other words of advice? Thanks! Mark

I have two boys with symptoms consistent with PANDAS/Sydenham's Chorea/Tourette's. As I research, the more it appears the conditions are very similar, just varying in degree of severity. i.e PANDAS with high psychiatric symptoms/minor physical symptoms and SC/TS the opposite. Autism is considered a spectrum - Autism Spectrum Disorder (ASD) - has PANDAS/SC/TS been described as a spectrum? Would it be a reach to believe with time and research, ASD and PANDAS/SC/TS will be combined into a comprehensive spectrum? Mark

I have two boys with symptoms consistent with PANDAS/Sydenham's Chorea/Tourette's. As I research, the more it appears the conditions are very similar, just varying in degree of severity. i.e PANDAS with high psychiatric symptoms/minor physical symptoms and SC/TS the opposite. Autism is considered a spectrum - Autism Spectrum Disorder (ASD) - has PANDAS/SC/TS been described as a spectrum? Would it be a reach to believe with time and research, ASD and PANDAS/SC/TS will be combined into a comprehensive spectrum? Mark

It's on Discovery Health channel (different than Discovery channel).

Thanks for the information - much appreciated!

Has anyone worked with Dr. Robert Reichler, at the Pacific Institute for Mental Health in Edmonds, WA. I have two boys who have rapid onset movement disorders along with OCD, separation anxiety, etc. am looking for a local specialist in WA State.