1Purple_peep

We have an apointment with Dr. B on June 3rd. I'm so happy it's not a huge wait. I'll keep you all posted on our progress. Thank you for being here and for your support:)

Thank you! I got the ok to call Dr. B from our ped. She will also do any bloodwork necessary for him. I called Dr. B's office and am in the process of setting up an apointment with him. His secretary is calling me back. Now I need to get on the horn with our insurance comapny to find out if they will cover out of our area with Dr. B.

Thank you all so much! And thank goodness for the Internet and this site!!! I was up until 4 this morning reading what I could. First thing this morning I called Daniel's Ped. She's wonderful and will be needed in this process. One of the older dr.s in the practice has seen one or two PANDAS cases in the past. I told the nurse that I would like him to be seen by Dr. B. I don't want to call him until I speak with her first. The nurse was so nice and helpful. The dr will be calling me back shortly. I called the Psy as well and am waiting to hear back from him. I went to school and informed the school nurse and his teacher what has been going on. I brought copies of the aritcles from here, just so that they can keep a closer eye on him. The school nurse had never heard of this before. Anything else I should be doing right now?

I looks like Dr Bouboulis in Ct it the one we should contact. I have two sisters that lived in Ct for over 20 years. I'd have no problem driving down, if needed. Off to bed so I can start making calls, first thing in the morning. Anyone know if we'll have to wait a long time to consult with Dr. B?

So, just to clarify, this doc put your child on allergy meds (isn't that what clariton is?) w/o checking if the red, raw throat was strep? Anyway, so glad you found this sight! Do you ever wonder if your own OCD may have an infectious etiology? Yes, the first dr on call did not check for Strep. This was on a weekend. I assume, she was thinking just allergies. I never thought of my own OCD having started with an infection. Unfortunatly, my mother didn't keep notes like I do I'll have to think about that one to see what I can come up with. On top of all this I'm furious with his schools psycologist! I met with her and asked her to please evaluate him as I was concerned about some of his behavior/obsessions that came on so suddenly. She said she would meet with him and send a note home in his backback. Every day, I asked him if he had seen her and he would say no. This went on for over two weeks...she has yet to meet with him. When we get some concrete answers as to what is going on, she's going to be in hot water!

Thank you all for your help! After doing some reading, I'm sure he has PANDAS! He has every symptom described: seperation anxiety, obsessional thoughts, irratiblilty and the tics. I have been keeping track of everything since this started, thank goodness. Sometimes it does pay to have OCD LOL This has been such a rough month for all of us. We live in Syracuse, NY. Can anyone recommend an expert in our area? We'll fly if we have too. It took us 6 years of painful and expensive infertility treatments to get our little guy. I'll do whatever I have to, so that he can get better. Here he is in Sept. Thank you again!

HI all! I'm so glad to have found this site after researching OCD, Strep, Clarition and tics. My 5 year old had been irratable, fresh and defiant for a few weeks. This was VERY unlike him. He had a stuffy nose so I suspected he also had a ear infection. Out of the blue ,he also tells me that he's having "bad thoughts" about mommy, daddy, the cat and dog. I'm very aware of these types of thoughts, as I have OCD. I take my son to the Ped who was on call for our Dr. No ear infections but he has a raw throat and his nasal area was red/ swollen. She put him on Clarition and gave me the name of a Psy for the bad thoughts. After a few days on the Clarition, he started this odd facial/nose stretching thing. We attributed this to a dry nose. He was doing it contantly but couldn't tell me why. I would ask him if his nose itched and he would say no. A few days later, my son got REALLY sick. He was throwing up,had the worse pain near his belly button and a high temp. I believed he was having appendicitis. I rushed him to the dr. and right away she believed that he had strep throat. He never complained about his throat, only his tummy. The quick test did not show up but the culture that was send out came back very positive for strep. This was the first time he has had Strep. He was put on Amox. for 10 days. Next, we were off to the Psy. who diagnosed OCD. We decided to try him on Celexa as I do well with that, for my OCD. I was checking out OCD in children online and found a conection beween Strep and OCD. That just blew my mind. I just know there is a conection here as my little boy has never had any thing so unusual like this before. This morning, he tells me that he can't stop blinking his eyes. I again, thought it was from having dry eyes in the morning. After school, the blinking and facial twitching was out of control. I called the Psy. right away. He informed me that this was from the Clarition? We are to stop giving it. I've only read a little about Pandas but I'll be here reading every thread, to get educated about this. I'd love to get any of your thoughts about this. Thank you for your time! Anne