kayleesmom

Thank you all very much for your replys. I'm sorry, I'm just now responding, as I only have internet access at work, and I am off on weekends. I picked up the abx on Firday afternoon. I started them on Friday afternoon, so she has had 3 doses so far. I did notice that yesterday she seemed to have a better day, but last night during the night she wok up and was repeating her OCD sayings (that is the symptoms she has with this). Someone asked me how I got a diagnosis of PANDAS. Actually, I got it from a psychologist. I had talked to her dr about these strange phrases she was repeating over and over and he suggested I talk to a psychologist who immediately siad PANDAS. I had never heard of it. SHE called the dr and asked far a round of abx for my daughter. And this is where we are today. I'm not sure how to even go about talking to her dr. I'm not sure he even thinks this is a real issue. My daughter has been her usually playful self more this weekened, I do know that. From doing some reading, it sounds like everytime her or someone in our family gets sick, this will start again??? Is that correct, even if it's not strep? Does this go away as she gets older, or is it something she will have forever? Also, what is the IVIG thing everyone is talking about??? Thanks for your help.

I live in Tennessee. I have not picked up the antibiotic yet ( I will after work), bu tI am assuming it is a standard dose/round, probably about 10 days. Thanks fo ryou reply, I'm really pretty down right now. Will her symptoms go away after the antibiotics( the psyc seemed to thinkso, but that's not what I'm reading). I didn't even know she had strep, even the test was neg, so how will I know if she gets it again?

Hello, I just came back today from a meeting with a child pshchologist who thinks my 4 year old has PANDAS. I have never heard of this before and I have so many questions. She deveolped mild/moderate OCD symptoms one day (sudden onset, I could name you the day). The psyc. asked me today if she had had strep. I told her no, but it's funny that she mentioned that because she had complained of a sore thoat off and on for about 4 weeks (same time as the symptoms started). She had no other symtoms and the peditrician tested her for step a few weeks ago and it was negative so they told me it was allergies. At that time she also had tiny bumps (few) on her chest and tummy. The psyc called the dr and prescribed her a round of antibiotics and said that it would take care of the OCD symptoms. I was so excited to hear the, but when I got to my computer and started researching PANDAS it doesn't sound like it will be that easy. Do the symptoms go away after treatment of a round of antibiotics? Do they come back if she gets strep in the future? Does this OCD cause permanent damage, and will she have disorders int he furture? Please give me all the info you can on this because I don't know much about it. ALSO, how could she have ahd strep with no other symptoms, acting fine, and test negative, and no one else got it from her???? Please help, I'm so sad today.