Hello,
I just discovered this forum today and have been reading up - great resource! I have learned so much.
My question concerns my daughter (11 1/2) who has not yet gotten a dx of PANDAS but we strongly suspect it. (Sudden onset OCD June '08 after strep, etc.) She has never had strep titer checked but I plan to ask her Dr. at appt. tomorrow.
However what doesn't fit are her vastly exacerbated symptoms since Jan (3 mo. ago) when she started menses. Can hormone flux make symptoms worse? Because the standard PANDAS description says it disappears with menses.
Also she got two vaccinations in late Dec. - could they have set things off and the puberty is just coincidental?
We are struggling for some path to take. She started CBT 5 weeks ago (where she 1st received dx of OCD) and therapist says we've now reached a wall. (possibly coinciding with some strep going around last 2 weeks). Her symptoms in public are mild to nonexistent (so she can function still) but at home can be a nightmare with her worst episodes last week getting violent (I have bruises to show for it). Mostly it is just frustrating to see our kind, caring, bright youngster turn into a selfish, panicky, seemingly "posessed" stranger. My dh takes it very hard, but I am sure we will find the answers to help her if we keep trying.
Thanks for your answers and support,
JNMom