Megaman

Fixit -- Maybe you'd like a specific referral from Megaman, but I can tell you that I found a local CST practitioner by going to the Upledger Institute web site, and then following yet another link to "Find a Therapist": Find a CST Practitioner Near You Then I PM-ed Megaman to check and see if he knew of the therapist I'd located, and he got back to me within a couple of days. Our appointment isn't for another week or so, yet, but I'll let you know how it goes. Hopeful! I don't think there is any difference between the two but I am not entirely sure. I'm looking into it as we speak. as for referrals, I agree with fixit. Follow the link provided. As I said earlier, I would suggest finding someone who has some training in the Brain Curriculum. I would suggest at least a couple of the courses but that is not entirely needed. I would be more than happy to help with people you find. I don't know everybody..lol There have been close to 100,000 people trained. I have been around for a while so I'm more than willing to help. Dave (Megaman)

I sent you a pm with the name of an excellent therapist in the area. For an update with our son. He seems to be doing very well. No vocal tics in at least a week and his neck tics are almost completely gone. He has been taking 2 teaspoons of lauricidin every day. He hates them as they taste like they are wax coated. We tell him not to chew..but he's 6. We are going to get a capsule form of monolauren and pour the powder into drinks/food etc. Today we are also going to start on colloidal silver. Monday we are planning on going for a Strep test just so we know what is going on. Love to hear how things progress momwithocdson..and everybody else for that matter.

Hi there, Full Disclosure: I teach for The Upledger Institute. I want to present the information in as clear a way as possible. I know how it can look to have a newbie on a forum all of a sudden start preaching about a therapy. I will not do that...too much There are different schools of CranioSacral Therapy. I my opinion the best researched and developed is The Upledger Institute's model. Dr. John Upledger is an Osteopathic Physician who spent 40 years continuing to develop the work. His is the most well recognized of all the schools. The Upledger Insitute They have a link to help you locate a practitioner in your area. Two other schools are BioDynamic Craniosacral therapy Milne Institute When searching on the Upledger site, I would suggest looking for someone who has been through the pediatric training and also the "Brain Curriculum" This is a new curriculum developed by Dr. Bruno Chikly. When I was talking of working with the Basil Ganglia, it was using a combination of CranioSacral Therapy and the Brain work of Bruno Chikly. I will include a link to his website. It is a new website and is still not fully up and running but it does provide some information Chikly Health Institute In doing research you will find there are two very distinct camps. Those who love it and those who (almost) hate it. A big part of the latter is there is still a view in some medical circles, and therefore schools, that the sutures between our cranial bones fuse by adulthood. This can happen where there is a pathology present such as craniosynostosis. craniosynostosis What has been found is that the sutures actually stay mobile throughout life and can be used as handles (for lack of a better term) to help mobilize the membrane system inside the head. I hope this helps some. Please let me know if there is anything else I can provide. Back to my son. His tic's were back a little tonight during dinner. Hardly notice them if you didn't know what to look for. they are still there at bed. We did some work with his Blood Brain Barrier and helping it to recognize appropriate cells. I'll keep you updated. BTW..has anybody else noticed that there are no motor tics during sleep?

Hi everyone, I'm sorry for taking so long to respond. Life kinda took over. Vickie, MomwithOCDson and fixit I really appreciate the support and advice. The links provided are great as is all the information on testing. To give an update. We began giving lauricidin yesterday and the tics seem to be better at night time. Is it a coincidence? Who knows. I asked him today how his neck was feeling and he said it still hurt but not as much. He also said while he still had a few neck things happening at at school, they were not bad. I will say it was news to me that there was anything happening at school. I don't want to add too much into the mix so we can tell what may or may not be working. We are going to talk in the next few days and possibly take him in for a strep test..full culture. To answer the questions about CranioSacral Therapy. It is not like NUCCA although there are a great number of Chiropractors that use it in their daily practice. CranioSacral Therapy works to release restrictions in the membrane system around the brain and spinal cord. In doing so, the fluid that is the environment for the CNS, is able to flow more efficiently. That means there is a greater infusion of nutrients and removal of waste Products. We look at how trauma (birth, car accidents, surgery, etc) has affected the fascial system of the body and in turn, the membrane system. No matter what manual therapy you talk about, good therapists know their anatomy. Knowing anatomy allows you to more precise with your hands and intention of where you are directing the technique. Part of our training is in Neuro Anatomy and how to access different brain structures and help them to function more efficiently. Knowing where the Basil Ganglia is located allows you to put your awareness in that area and help the involved tissues be more supple. Part of the therapy can involve therapeutic imagery and dialogue, meaning the client can dialogue about what is happening for them at the moment. While my wife was treating our son, he asked something along the lines if all cells were allowed into the brain. My wife mentioned the Blood Brain Barrier and its job. He seemed surprised that not all cells were allowed cross and that he had some that were crossing that were not supposed to. Long story short they worked with his body to only allow certain cells across and to hook up his immune system with his Basil Ganglia. As I said, he woke up the next morning tic free and has been for almost 2 weeks. Like I mentioned above, they are starting to return a bit. Probably time for more work..also want to see what the Lauricidin does. There are many people who scoff at what i just talked about. That is entirely up to them. I am not here as a way of promoting myself or the therapy in any way. I am worried about my kid and want to share what we are doing and learn from others. I appreciate everything we have had offered to us so far. I look forward to continuing the conversation.

Hi there, I have looked through lots of the forums here and they have been helpful so far. I still feel the need to get what is happening with us out here and see what people say. About 8-9 months ago, our son started moving his neck in a way that made us think he had some real tightness where his occiput meets his first vertebrae. We didn't pay much attention to it other than trying to treat it a bit. For some background on us (Mom and Dad). Mom is a PT and Dad is a Massage Therapist but we only do a form of therapy called CranioSacral Therapy. So we were treating him and it seemed to help a bit. Fast forward to the past 3 months and he has developed a full on motor tic in his neck that also includes a vocal tic. Not a big vocal tic but little grunts here and there. Almost always when his neck is bad. Initially we were thinking TS, then a friend suggested PANDAS. I have been reading and reading. To the point where I am confused. Here is what we have done so far. 1. Lots of CranioSacral. Mobilizing the Dural Tube certainly helps but the tics do not go away totally. We stopped treating for a bit and the tics came back..a lot. They also involve a squinting of the eyes. 2. Mom got in and treated his Basil Ganglia (BG) directly and had him connect his immune system to the BG. The difference was immediate. The next day and up to about 2 days there were no tics in any way, during the day. they have started up again during the day..but are very very minor. Interestingly they seem to remain at night. As we are relaxing and reading stories, his neck tic is happening but it also seems to involve his body as well. Lots of flopping around. The confusion is around treatment. It seems that people can have a positive test and be asymptomatic or have a negative test and have symptoms. I have also read that Antibiotics really help. I also read that they help until the next strep infection. Part of me wonders if the Antibiotics (A/^_^ are working, or if because things seems to be episodic in nature maybe it is a lull. With the A/B's, do they get rid of the symptoms immediately? How do we know when to get a test done? Should we start with the rapid response testing or go for a full culture? We would love to treat naturally but if A/B's are the way to go, there is no question we will do that. Any input with Lauracedin or colloidal silver? Love some help.