mars

Can you explain to me the waxing and waning. thanks

Thanks Faith. My son is 9yo and that is what I figured too. What does it matter if I have figured out the trigger and can keep it controlled if it actually classified as TS. As I had mentioned he doesn't seem to have any of the other symptoms of TS though. So basically I will just try my best to keep him off of dairy and wheat(it will be nice to get the results on Wed. of his testing for food sensitivities)and hope for the best. Good luck to you too as well in finding the trigger. Just to mention he does get a certain tic and will do that for a while and then it changes to another or different ones at the same time. thanks

yes, when the food is eliminated he is basically tic free once they are out of his system. the hard thing is though is keeping it out of his system b/c he wants to eat eggs and milk so badly. i've tried soy milk but he doesn't like it. and then yes, if he has the offending food he gets his tics again. do you know what the pattern for tics is for tourettes? what is waxing and waning tics? i wonder how they know if this is tourettes or just a reaction from food? he will get vocal tics but very rarely like making a little sigh. is that a vocal tic? he doesn't ever say anything or yell out loud. just to note he was basically tic free this morning and then i gave him some waffles(Eggos) and he started ticcing again about 20-60minutes after. i read the label and they also have eggs and wheat in them so i bought him some egg and wheat free ones today. ahhhhh. hard to eliminate everything.

I have been reading about the wax and waning of TS. Not sure what the is or how the tics present in TS but my sons tics basically are always there. Never go away. If he eats the foods that we think are making him tic then he will tic every 2-10 seconds for as long as he eats these foods. When we stop the foods and sometimes,yes, it does take time to get out of his system then he basically will tic once every hour if that. Now we have never completely stopped the wheat and dairy b/c it is in the bread he eats even though it is white. Seems to be in everything!!!! If we stopped completely then he wouldn't be able to eat much. It is hard at his age to stop all the things he likes. He used to drink at least 1 bag of milk/day easy and has always been a good eater. Maybe this is what has triggered this intolerance, just too much?? I don't know but wish I could just get some answers. He was tic free the one day and then had a chocolate bar and almost instantly started his tics. Also, he has been off the food lately and no tics and then had pizza last night with cheese and again almost instantly the tics started. We have only done an elimination diet here at home but I have an appt. with a special allergist who I have pay privately but she says she tests for over 200 allergens as opposed to the testing that is covered under OHIP. He is going to be getting that testing as well through the allergist. Seems like this one on WEd. will be a lot more accurate. I am not sure if this helps you out with your questions?? I would be more than happy to answer any that you have and would benefit from hearing from others experiences. Just to note, when I was young I was allergic to dairy,eggs,wheat orange juice, but not oranges??? but I never had tics just got a rash. I did outgrow this though. I don't know if this has anything to do with my son's allergy/intolerance?? I was reading my reply and thought I should mention that his tics once everything has been mostly eliminated basically are nonexistent.

I have been reading about the wax and waning of TS. Not sure what the is or how the tics present in TS but my sons tics basically are always there. Never go away. If he eats the foods that we think are making him tic then he will tic every 2-10 seconds for as long as he eats these foods. When we stop the foods and sometimes,yes, it does take time to get out of his system then he basically will tic once every hour if that. Now we have never completely stopped the wheat and dairy b/c it is in the bread he eats even though it is white. Seems to be in everything!!!! If we stopped completely then he wouldn't be able to eat much. It is hard at his age to stop all the things he likes. He used to drink at least 1 bag of milk/day easy and has always been a good eater. Maybe this is what has triggered this intolerance, just too much?? I don't know but wish I could just get some answers. He was tic free the one day and then had a chocolate bar and almost instantly started his tics. Also, he has been off the food lately and no tics and then had pizza last night with cheese and again almost instantly the tics started. We have only done an elimination diet here at home but I have an appt. with a special allergist who I have pay privately but she says she tests for over 200 allergens as opposed to the testing that is covered under OHIP. He is going to be getting that testing as well through the allergist. Seems like this one on WEd. will be a lot more accurate. I am not sure if this helps you out with your questions?? I would be more than happy to answer any that you have and would benefit from hearing from others experiences. Just to note, when I was young I was allergic to dairy,eggs,wheat orange juice, but not oranges??? but I never had tics just got a rash. I did outgrow this though. I don't know if this has anything to do with my son's allergy/intolerance??

Thank you for your response. I guess the other factor could be that the food intolerance sets off the TS?? I will look at the other forum as well. thanks.

I am new to this forum and not sure if this topic has already came up, probably has, but nevertheless I would appreciate any input. My 9 year old son has had tics for a few years now and I can't seem to get a definite diagnosis. He doesn't have any other symptoms of TS such as OCD, ADHD etc. just the tics. They are motor mostly and very he will get a vocal tic. They are constantly changing from eye blinking to eye rolling, shoulder shrugging, head jerking, etc. They never go away for a period of days or months unless I stop certain food he eats. But....I definitely link them to food. When we have stopped milk, eggs, wheat etc. they 99.9 % disappear. Has anyone else heard of this? The doctors don't seem to want to comment on this? Would he still be classified as having Tourettes? He does very well socially and in school academically with no problems at all. He is a very good athlete and can sit and concentrate no problem. thanks for your help!!