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I posted last night about our middle son having PANDAS. We see Dr. Latimer in Maryland. This Friday we are moving to Winter Garden, FL. We are staying with Dr. Latimer, but I would like to find a pediatrician in the Winter Garde, Orlando, Clermont area that at least knows about PANDAS and is open to it. Anyone know of any??? Please let me know. Thank you. Nancy

Thank you for your reply. Yes, the steroids were tapered down. He will finish this Friday. He seems a little better this week then last, but still has this new counting thing. If we keep him busy and his mind active doing something he seems better, it is when he has time on his hands, that he get frustrated. We are a homeschool family, so we (me and the three boys) are with each other 24/7. So if everyone thinks the augmentum should be put up again, how do I get the doctor to listen and do something???

My son is 12. He is on Augmentum XR. The first week of the pred. he was good, but that is also the same week my first son started a cold / come to find out strep. The second week on pred. Pandas son starte dto go down hill again. He is now on his last week of pred. The other two boys have been on amox. for 4-5 days now (10 day dose - they are doing well, healthy and fine.) Thank you for any help.

I have read Saving Sammy. I do think you should go back to the higher dose, but Dr. Latimer was pretty short with her email answers. I believe my other two boys who tested poitive for strep was just a new infection that just started. The are both on a 10 day Amox. and are fine, healthy, and no symptoms.

My middle son, with no OCD at all and healthy, woke up October 1, 2009, and was having ocd symptoms. He was "touching" everything in funny ways until it "felt right" or not touching some things at all. He was my baker and took 4 Wilton cake classes, and now he will not step into the kitchen. Long story short, after two general doctors, and one Nero. doc., we ended up at Dr. Latimer's office, after finding her name on this forum. She did diagnose him with PANDAS. January 12, she put him on 2000 mg of Augmentum a day. At this time he also had what she called impetigo rash around his mouth. We had an appointment on February 4th. He was doing better. As he put it 35% better. She dropped him down to 1000 mg a day of Augmentum, and gave him a three week treatment of Predisone. Just this past week - we brought our oldest son and youngest son to the family doctor - they both tested positive for strep. The family doctor would not test PANDAS son becasue he was already on medicine. Since February 13 PANDAS son has been having a rough patch. Where he was getting happier, and seemed to be on an up swing, he is now sad again. He has now told me he has started counting letters in words, that he hears, or that he thinks of in his own mind. He is sad. I also just buzzed his hair (he always wears it buzzed). I noticed a rash along the sides of his head. My questions: Is there dramatic ups and downs? Should we get him back up to 2000mg a day - it seemed to be doing much better? I have emailed Dr. Latimer, and she has emailed back, but very short answers - with still more questions. Could someone please tell me what it is going to be like - are we going to have daily ups and downs? I just need some answers.