We can't seem to get a definitive answer that IVIG works....most of the people that have reported success have only found success for a short period of time. The symptoms always seem to reappear. If that is the case, why the IVIG??
Is there anybody that has a symptom free child post IVIG?? If so, how long symptom free? What is the prognosis for long term?
We are contemplating the positives with the negatives for IVIG. Also, would like to hear the negative side affects so that we can see both the good and bad. Would love some answers, as we are perplexed which route to take.