A very nice woman on another list serve pointed me to this one and I'm so glad she did. After 2 months of regression, suddenly weird behaviors, extreme physical aggression in my Asperger's son (7yrs old), I was finally able to get a strep screen done (negative) and then a strep antibody test. The pediatrician called yesterday morning and said the blood test for strep was 296 (normal is 0-200 per this lab). She has started him on Amoxicillin but as I read through the posts I'm wondering if maybe we need to be on Augmentin XR - that seems to be more commonly prescribed. My pediatrician has one other kiddo she just diagnosed with PANDAS and put on Amoxicillin so she didn't know what to expect at this point. When I first approached the psychiatrist about all the regression, sudden high levels of anxiety, etc and handed her an article on PANDAS she said she didn't know anything about that but that we just needed to put him back on Seroquel for the behavior. While I didn't agree and told her so, I said I would give it a try. I thought we should be increasing his Lexapro because his anxiety had gone through the roof. After doubling the initial dose of Seroquel and then doubling it again this past Thursday we were still sprialing downhill out of control. Now that I know it's PANDAS I'm wondering if I should contact his neurologist or let the pediatrician handle this. It's obvious to me I won't get anywhere with the psychiatrist.
Of those that have done the IVIG, was this after weeks/months of antibiotics or in addition to antibiotics? Is that something done in the physician's office or did it require hospitalization?
Thanks for the posts here. Glad to know now that I'm not going crazy and that there really was something medically causing my son's symptoms.
