hello, im here.
ive cme from another forum daily strength= which has nice people on it- but just seems to be me on there at mo
dont really have fun putting 10 posts up and getting lone reply- i need the support mannnnn!!!!
am a mum of a brill 14 yr old son- who has tics since he was 7
at the momet he is quite bad- hence my need for posts
when his tics are almost not there i dnt think about tourettes at all- other moans and problems take over- but when its bad- you know how it is- it dominates your life
my neighbours can hear his tics when they walk past the house- even with windows shut
i went through all last summer with windows shut so we could have some privacy- the houses are all backed oto each other- i dont wnaat everyone to heara my sons tics- you dont understand until youve had a child with it yourself- its to easy to thin that hes a wierdo- infact he is a vey normal, happy well adjusted boy with a vocal tic- laely its been swallowing also. a kind of deliberate swallowing.
but mostly its a noisy raw, right through the throat
after reading others posts n the daily strenngth forum i feel quite lucky he doesnt have physical ones- but certainly has had physical tics in the past! and still does shrug his arm out when nervous-
the worry when tics are bad- in enormous
you need the support of talkig to others in the same boat
there is a young person fromt he other forum who tries to commit suicde because of it- her doc has told her she has the worst he has seen- she faints and cricks her neck because of it- anther guy couldnt study as his eyes ket on going wobbly when trying o focus
your heart reaches out to these people
i know how you are feeling when you need the support of people in same boat- and you are reaching out- and you dont get a respnse for days- so thats why ive changed- havent quit the ld one- but will keep searchng for poeple to talk to about tourettes when i need the support as its such a bloody relentless condtion- there is NO LET UP- for some it continues in sleep
so here goes for this forum ill gve it a go- but if its full of sleepy people theni dnt know- maybe we should join three or four at sam time- that way we might get some sort of communication!
its a bit sad when you see forums set up- with great effort and with lots of things to do on it and lots of really good positive things on it for people but not many peole on it
