laura s

FYI, I took azithromycin these past 3 days and each time I took a 250mg tablet, I started severe cramping and bowel problems - within 2 hours after taking it! Horrible, imagine your worst monthly cycle - cramps like that! Just a warning for you who may have kids who can't talk and tell you how they feel after taking this med. (like my son). I can't imagine how he made it through the school day if he felt like I felt. Laura

My son is 10 and he is on Azithromycin 250 mg 2x day plus Augmentin 1000 mg 2x day for about 3 months now. He is doing really great. He gets a big dose of probiotics every night... alternating UltraFlora and VSL. Dr. T. says one antibiotic kills strep, the other slows it down (from multiplying) something like that.

We suspected that my daughter (3) was the carrier and did a rx for penicillin. After the 3rd day, she started vomiting so I waited for that day's dose. Later she was better so I gave her a dose of penicillin. That night she had raging fever, sweating and smelled like "strep". Her throat culture was negative before I started the penicillin but I did not know that yet. Her titers came back normal but they said she has staph bacteria ?? but not concerned about it. Just a coincidence she got sick on penicillin or is did it stir up strep hiding. Thanks. Laura

So we hear about strep hiding in tonsils, gut and other places. Could strep be hiding in ears, thus causing hypersensitive hearing? I think I remember in Saving Sammy, Beth said Sammy covered his ears. There has to be something with fear, anxiety, hypersensitivity and the EARS! My son covers his ears all the time - seems mostly out of fear. Has anyone tried ear ointments/oils/antibiotic drops or anything for ears? Thanks Laura

So if your child tests positive for band 41 =IGG and IGM, plus they have the ocd, tics, meltdowns... sounds like my kid! Which TLR test and which drug..... sign us up!!!!!!!!!!!! Thank you for your constant research and updates. Laura

Does anyone know if their kids can feel the "exorcist" tantrum coming on? Can they warn you that it is about to happen? Someone said Dr. T. said it is a chemical being released causing these episodes. Does anyone know what chemical? Thank you for any info. Laura

The "exorcist syndrome"... did Dr T say which chemicals are released? norepinephrine??? Any other way to stop this other than antibiotics / or big pharma drugs? Our son gets these too. Used to be several times a day, now it is occasionally since antibiotics, but just horrific! Sort of look like seizures! Laura

I don't know how to start a poll but reading through past posts it seems like there are a lot of kids who got a tonsillectomy and we are curious how many it helped. Can we start one? Thanks. Laura

One month on antibiotics, Azith 250mg 2xday and Augmentin 875mg 2xday. Really saw great improvements immediately starting these antibiotics. Now nothing... plateau. I don't want to say "worse:, just seems unaffected by antibiotics now. I feel like we need to change it up again. (He's 10, non-verbal and still a mess) Thoughts? Try Sammy dose? Just be patient? I feel like a neurotic mom - scared to ask the doctor. THANK YOU. Laura

It looks like he is itching inside his body. Like he can't scratch deep enough. Legs, arms, chest, ear. It was really really bad before we started antibiotics. Thanks. Laura

HI, MY SON CAN'T EXPRESS WHY HE SCRATCHES HIS SKIN UP. IT LOOKS LIKE HE HAS BEEN IN A CAT FIGHT. HE SCRATCHES SO HARD TOO! I'M HOPING ANY OF YOUR KIDS WHO CAN "VOICE" WHAT IT FEELS LIKE CAN TELL ME WHAT MY SON IS FEELING. THANKS. LAURA

The cluster meaning, same neighborhood, same area...they probably all have the same pediatrician who just keeps "grabbin' and stabbin'" them with vaccines!!

My non-verbal son acts like he just broke his leg when he only bumped it. One little boo boo can throw him into a crying fit for 1/2 hour or so. I was wondering if this hypersensitivity to pain, light, sound (covering ears), etc. is related to PANDAS? Do any of your verbal kids complain about pain or sounds, etc.?? Thanks. Laura

I don't want to jinx it either... My son has "autism" and every doctor we've seen said his raging meltdowns were just part of the "autism"- even Riley Children's Hospital said this..."better go get behavior therapy and Risperdal". Well, we recently stopped his medication (Seroquel and Prozac), then we did steroid burst... he got worse, then we tried Augmentin and he got a little better... stopped pounding and banging til his hands bled, then we started Azithromycin 250 2xday and he stopped crying and no raging meltdowns!!!! He still has a temper because he gets frustrated he can't talk but he is not attacking us or raging for 45 minutes anymore. He is happier and not crying all the time. I pray this lasts!!!!!!!! Thank you PANDAS group and Dr. K and Dr. T. Laura

Do any of your kids have raging tantrums or crying spells? If we get off Seroquel and Prozac what would you recommend? Namenda? Will antibiotics stop this if it is PANDAS? Thanks Laura