llmusicmom

What are the three simple tests? (Sorry to be the newbie) "If your child has been diagnosed with ADD/ADHD, OCD, Anorexia, Tourettes, or ASD spectrum, these are the three simple tests you need to have your child undergo to rule out Pandas first."

My daughter had the flu mist and the chickenpox booster in September 08. 2 weeks later she went to the school nurse with a sore throat. 4 weeks later home with a fever. Then every 4-5 weeks through September of this year she was sick with something....1st confirmed strep in March, 2nd in June concurrent with explosion of facial tics and 3rd in August prior to tonsillectomy 9/09. Prior to 9/08, she hadn't been sick since she was 18 months old. Eye blinking was the first thing I noticed, but cannot remember when it started - not sure if prior to vaccines or not, but clearly everything went wrong after the vaccines. Will never get flu vaccine again. She caught the H1N1 in November, but we didn't get the vaccine.

Debbie, Have you looked into Sydenham's Chorea? There are both heart-related symptoms and the skin bumps as part of that condition (and it is very PANDAS-like). Here is a link to a Sydenham's symptom article: http://www.mdvu.org/library/disease/sydenhams/syd_sym.asp Just a thought. I'm brand new here....and just when I thought I could breathe a sigh of relief, I'm reading your posts and worried all over again. My daughter started with the eye blinking and occasional facial tics in January 09, then full blown tics and chorea with 2nd diagnosed strep in June. 3rd strep in August and got her tonsils out in Sept. Facial tics all but gone, but still the arm/leg movements, which seem to have gotten worse over the last 2 weeks. And she has on occasion, tho I haven't kept track of it, complained of a racing heart. She had a terribly high fever for about 36 hours on 11/1-2 (104.5), tested neg for strep and flu, so given Zithromax for a presumed sinus infection. 3 days later, tested positive for Type A Flu and took the Tamiflu. Unfortunately pediatrician won't order the Titers as neurologist won't acknowledge PANDAS. Husband is reluctantly on board with the whole PANDAS concept, but refuses to let me get the CamKinaise done, and completely balks at steroids/prophylactic antibiotics. Now I am terrified about the heart racing and don't know what to do if/when it happens again. We are unemployed, just switched insurance and facing huge deductible to start the whole new round of tests....if the Sydenham's Chorea is a different diagnosis than PANDAS, how and when should I try to get that checked out? Oh, and yes, she has bumps, too-mostly around her mouth. Both times, the doc just called it impetigo and says the antibiotics will take care of it. she has also been diagnosed with keritosis pilaris by the dermatologist for the bumps on her arms - which I have also, and they say is incredibly common....