I agree that Dr. Trifiletti. is the way to go. In addition, you might consider seeing an immunologist. Many on this forum have been happy with Dr. Bouboulis (1 hour from NYC in CT) http://www.latitudes.org/forums/index.php?...art=#entry42357 . Many PANDAS kids turn out to have underlying immune issues. Moreover, if you do find an immune issue, you are more likely to be able to get IVIG covered by insurance.
Thanks all for the comments. We had a follow-up with our ENT as E had his tonsils and adnoids removed in early November. The ENT was suprised his symptoms did not improve. Our next scheduled step is a follow-up with our neurologist tomorrow and the PED next week. A blood test is due back to check titer levels so based upon the results of all those factors our next step may be Dr Trifiletti. I will keep everyone posted.
