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Hi, yes, please keep me posted as well. As of now, we’re trying a few things to help, especially with the winter weather. He’s been taking vitamin D, and I’ve noticed some improvement when he does. We also give him an Epsom salt bath twice a week not sure if it’s truly helping, but he enjoys staying in the water, so I’ll take that as a positive. Yesterday, he played in the snow for a couple of hours, and later that evening, his tics intensified. I wonder if the cold weather is a trigger. There are times when his tics seem to ease for a day or so, giving me hope they’ll stop entirely, but they always come back with varying intensity and sometimes new patterns. Most of the time, his tics seem to intensify when he has a cold or fever. He also tested positive for scarlet fever (strep), which I mentioned to the doctor. I asked about PANDAS, but they brushed me off, saying it’s not approved in the literature. He was on penicillin for 7 days, but unfortunately, there was no significant improvement in the tics. It’s all so unpredictable, but I’m doing my best to track and understand what might be influencing this. Diet-wise, he’s on a keto diet—no dairy, sugar, or gluten—but I let him have corn because he loves it. We recently had a neurology appointment they diagnosed his condition as motor tics and asked us to return for follow-ups when he shows vocal tics. No blood tests or additional evaluations were done. Other than the tics, there are no neurological or psychological concerns. He’s his usual self, and the tics don’t seem to bother him much, although he’s aware of them now. Sometimes, when they happen, he glances at me to see if I’ve noticed. I try my best to ignore them. I know it’s tough, especially since he’s so young. My mother is a doctor. She has worked with children in a children’s hospital and has seen many cases of tics in children. She just advised me to ignore it. However, the issue is that she has never seen children with eye rolling tics. She was already concerned, which is why we had to do all those MRIs and EEGs. Hi, I think I’m in the same boat as you. My son is about four years old. He had his first tic when he was about 1.5 years old. It started with a movement in his shoulder. I’m not sure if it was a tic, as it only lasted a week or two. The second tic started about nine months later—an eye-blinking tic, just after he started kindergarten in early spring. This also lasted about two weeks. Then we went to Sri Lanka, and it completely disappeared. The new tic, eye-rolling, started about nine months later during winter in Germany. He has been experiencing this tic for about three weeks now. It comes and goes—some days I rarely see it, and on others, it happens every minute or so. It’s very hard to watch. He’ll just do something, and both of his eyes will shift toward the left. Two weeks into this, he went to kindergarten and came home with a strep infection. He tested positive for strep and was on penicillin for about seven days, but there were no changes in his tics. We completely weaned him off because he didn’t show any other signs of strep. He still has his tics, and since it’s winter, I think the cold has accelerated them. Other than that, he has been sugar-free throughout his life, and this week we cut out all gluten and dairy to see if it makes any changes. So far, I don’t see any changes. If you happen to know any remedies, even just to minimize them, please let me know.

Hi @MomBear I think I’m in the same boat as you. My son is about four years old. He had his first tic when he was about 1.5 years old. It started with a movement in his shoulder. I’m not sure if it was a tic, as it only lasted a week or two. The second tic started about nine months later—an eye-blinking tic, just after he started kindergarten in early spring. This also lasted about two weeks. Then we went to Sri Lanka, and it completely disappeared. The new tic, eye-rolling, started about nine months later during winter in Germany. He has been experiencing this tic for about three weeks now. It comes and goes—some days I rarely see it, and on others, it happens every minute or so. It’s very hard to watch. He’ll just do something, and both of his eyes will shift toward the left. Two weeks into this, he went to kindergarten and came home with a strep infection. He tested positive for strep and was on penicillin for about seven days, but there were no changes in his tics. We completely weaned him off because he didn’t show any other signs of strep. He still has his tics, and since it’s winter, I think the cold has accelerated them. Other than that, he has been sugar-free throughout his life, and this week we cut out all gluten and dairy to see if it makes any changes. So far, I don’t see any changes. If you happen to know any remedies, even just to minimize them, please let me know.

Hi, I think I’m in the same boat as you. My son is about four years old. He had his first tic when he was about 1.5 years old. It started with a movement in his shoulder. I’m not sure if it was a tic, as it only lasted a week or two. The second tic started about nine months later—an eye-blinking tic, just after he started kindergarten in early spring. This also lasted about two weeks. Then we went to Sri Lanka, and it completely disappeared. The new tic, eye-rolling, started about nine months later during winter in Germany. He has been experiencing this tic for about three weeks now. It comes and goes some days I rarely see it, and on others, it happens every minute or so. It’s very hard to watch. He’ll just do something, and both of his eyes will shift toward the left. Two weeks into this, he went to kindergarten and came home with a strep infection. He tested positive for strep and was on penicillin for about seven days, but there were no changes in his tics. We completely weaned him off because he didn’t show any other signs of strep. He still has his tics, and since it’s winter, I think the cold has accelerated them. Other than that, he has been sugar-free throughout his life, and this week we cut out all gluten and dairy to see if it makes any changes. So far, I don’t see any changes. If you happen to know any remedies, even just to minimize them, please let me know.