HelpNate

Hi EAMom, We live in the San Francisco area, Pleasanton, CA to be exact. Thank you for your feedback. non-strep bacteria and viruses can also trigger exacerbations...usually ones caused by strep are the worst. For us, H1N1 and fifth's dz were triggers. Dental work/dental infections can also be big triggers. yes...there have been others like this. My own dd didn't get spacey...OCD, anorexia, tantrums, emotional lability, some tics, compulsions, depression, stopped wanting to play, considered herself a "bad person", social anxiety, separation anxiety....

Hello, I am new to this site. My son was diagnosed 3 years ago with PANDAS after having two back to back Strep Infections. He had very acute symptoms. We ended up having him on anti-biotics for 6 months and he did improve. Over the past two years we have noticed that some of his symptoms returned from time to time but at a lesser degree, and strep swabs came back negative so we did not relate it to the PANDAS. It was not until recently, when I started to notice that the tics returned, again, with a vengance, along with other OCD like symptoms and ADD symptoms that it made me think this could be related. I took him in for another strep test recently (as he was sick and showing symptoms) and it was negative. Yesterday his teacher said something to me that made me stop in my tracks. She said, " Between August and the end of October your child was an angel, he acted somewhat "young" but was an all around good kid. However, I was out sick for a week at the end of October (when we started noticing the tics return as well as the other symptoms) and when I returned I was teaching a completely different child. It was like this darling child regressed one year emotionally and socially overnight." This felt all too real to me as that is how I feel. Like one night you have one child and the next day a different child. I feel very guilty that for the past two years, I have not considered PANDAS and instead punished my child and/or allowed the school to punish my child for issues that may be out of his control. I am going to the doctor tomorrow to request an ASO be taken as well as to request an MRI (my son was born with an enlarged cisterna magna, fluid filled sack of water in the back of the brain, I want to rule out that this may be causing pressure). I will request that he is put on antibiotics again. Are there any other suggestions? Also - has anyone who's child is socially and emotionally behind other children. or, is "spacey". This is something that I have noticed following his first onset of PANDAS