LovingMJ

I would really like to hear more about this. My son had a WONDERFUL day today....tic free and so well behaved. I spoke to his teacher today. My mom is with him now (I work) and it is at the 6 hour mark and tics are returning. Please, if ibuprofen works for you...please tell me more about it?

I have seen on here a couple of times that some find ibuprofen for relief. How often do you give it? How many times per day and do you give it every day until the episode passes? Is this harmful at all to our DCs bodies? I gave him some this morning prior to daycare.

Should I make an appointment with ped neurologist (one that was rec here) WITH OUT seeing my ped first? My son has never had a strep test done before. I have no back up...at all. Can I go see this neurologist and tell him of my sons history and that I think he has PANDAS? Or, will this doc think I am NUTS?

At the moment I am so overwhelmed with information...my head is going to explode! I had a crying breakdown an hour ago !! If he does have pandas...will have to live lime this for the rest of his life? Will he have to take antibiotics for the rest of his life? Please explain this like you are talking to a 5year old. I am so confused. Everything that I am trying to process...I have to in turn explain it to my husband and I am not understanding everything. Thank you all in advance... All of you ladies are wonderful and if you were infront of me I would hug you all!!

Thanks Everyone. I am in NJ....any one have any DR recs for me?

Hi Everyone....I am new, just found this site last night. I am very scared....my thoughts are all over the place....please bare with me. I don't even know where to begin.... My son MJ will be 4 this January. He was always a runny nose and coughy kind of kid...the kid who was always sick. Every time I took him to the pediatrician he had a sinus infection. Always treated with antibiotics (NEVER was tested for strep). The ped recommends we go see an ENT...which we did last January. He suggested we go for a sweat test to see if he has cystic fibrosis (which was negative). He also suggested we go to an allergist to get tested for allergies. This is where things start to go down hill. He tested negative for all allergens, but he was SCARED to DEATH of the test. He cried like never before when the little needles went in to his back. Now, his fear of doctors begins. We begin to see the ENT regularly for his chronic sinus infections and each time we go he puts the scope in his nose...and he HATED IT!. Added to his fear or doctors. The ENT prescribed Singular on January 20th, 2008. From that date on....my little boy changed. MJ had a very bad reaction to the Singular. He was only it for about 2 weeks when he became so fearful (to the point of trembling) and his blinking tic began. He also began to have frequent urination. The frequent peeing was the worst...broke my heart to see my baby like this. After we stopped the Singular...he slowly began to get better. The fearfulness/bad dreams stopped as soon as he stopped taking it. We went to urologists and eye doctors...all confirmed that he was fine. Just nervous tics that most boys have...he will grow out them. He ended up having his adenoids removed in April....and has been well in the sinus department since. All tics...peeing and blinking were gone at this point. Everyone told me the fear of doctors made him so scared that is why the blinking started. Flash forward to August....my husband and I are very excited for a family vacation at the beach. We talked about it every day to MJ and how much fun we were going to have (he is our only one so far). 2 days before we leave he is crying in raging pain that his ear hurts. Take him to the ped and he has an ear infection. Put on antibiotics. We left 2 days later and all is good until the drive there...I notice while MJ is watching his DVD in the back seat the blinking has returned. My heart instantly goes in to my stomach. When we reach the hotel and unpack he starts getting upset...saying that he misses his toys and is misses his house. He ends up having fun...but his behavior was off...acted up a lot and wasn't listening at all. The blinking continued for about a week two after we returned home and then life was back to normal. Again...was told that the fear of going back to dr and the pain in his ear made him scared and stressed the blinking started again. From August up until last week life was good for us all. My husband and I even commented how good his behavior has been and he has started to "grow up". Then BAM the eyes start blinking, he starts getting scared ALL THE TIME...will not go in his bedroom alone, will not go in any room with out a light on, will not sleep alone and will not sleep with a light on even with me. The frequent peeing has appeared at night too when he has bad dreams. Over the weekend he barely slept because he kept waking up crying about a hand hanging in a tree!! He also has been acting up again and doing things that he knows better not to. He also started a new tic...itching his butt! He does it constantly...I have made sure many times it was clean. It is just something he does and we try our best to ignore it. As I was searching the net last night and came across some posts from this board...it HIT ME....MJ was just at the ped last week complaining his ear hurt. The doctor said he has swollen glands because when she felt his throat...he said OUCH! We left there with nothing...she said his ears were fine just some fluid in his ears it was just the start of a cold. At this point he was fine tic wise...no blinking or butt scratching. Last night was a good night sleep wise. I have him Tylenol before bed and he only woke up once to pee. I asked him this morning..."Did you have a good sleep?" He said, "Yes Mommy...I didn't have any bad dreams". I think he was too tired of not sleeping the past few night it finally caught up to him. It breaks my heart. All of you have been going through this longer than me and have experience. Do you think this PANDAS or OCD? His ped just feels his some nervous tics that will come and go and he will outgrow them. I appreciate any and all feedback and I apologize that this is so long.

Hi Everyone....I am new, just found this site last night. I am very scared....my thoughts are all over the place....please bare with me. I don't even know where to begin.... My son MJ will be 4 this January. He was always a runny nose and coughy kind of kid...the kid who was always sick. Every time I took him to the pediatrician he had a sinus infection. Always treated with antibiotics (NEVER was tested for strep). The ped recommends we go see an ENT...which we did last January. He suggested we go for a sweat test to see if he has cystic fibrosis (which was negative). He also suggested we go to an allergist to get tested for allergies. This is where things start to go down hill. He tested negative for all allergens, but he was SCARED to DEATH of the test. He cried like never before when the little needles went in to his back. Now, his fear of doctors begins. We begin to see the ENT regularly for his chronic sinus infections and each time we go he puts the scope in his nose...and he HATED IT!. Added to his fear or doctors. The ENT prescribed Singular on January 20th, 2008. From that date on....my little boy changed. MJ had a very bad reaction to the Singular. He was only it for about 2 weeks when he became so fearful (to the point of trembling) and his blinking tic began. He also began to have frequent urination. The frequent peeing was the worst...broke my heart to see my baby like this. After we stopped the Singular...he slowly began to get better. The fearfulness/bad dreams stopped as soon as he stopped taking it. We went to urologists and eye doctors...all confirmed that he was fine. Just nervous tics that most boys have...he will grow out them. He ended up having his adenoids removed in April....and has been well in the sinus department since. All tics...peeing and blinking were gone at this point. Everyone told me the fear of doctors made him so scared that is why the blinking started. Flash forward to August....my husband and I are very excited for a family vacation at the beach. We talked about it every day to MJ and how much fun we were going to have (he is our only one so far). 2 days before we leave he is crying in raging pain that his ear hurts. Take him to the ped and he has an ear infection. Put on antibiotics. We left 2 days later and all is good until the drive there...I notice while MJ is watching his DVD in the back seat the blinking has returned. My heart instantly goes in to my stomach. When we reach the hotel and unpack he starts getting upset...saying that he misses his toys and is misses his house. He ends up having fun...but his behavior was off...acted up a lot and wasn't listening at all. The blinking continued for about a week two after we returned home and then life was back to normal. Again...was told that the fear of going back to dr and the pain in his ear made him scared and stressed the blinking started again. From August up until last week life was good for us all. My husband and I even commented how good his behavior has been and he has started to "grow up". Then BAM the eyes start blinking, he starts getting scared ALL THE TIME...will not go in his bedroom alone, will not go in any room with out a light on, will not sleep alone and will not sleep with a light on even with me. The frequent peeing has appeared at night too when he has bad dreams. Over the weekend he barely slept because he kept waking up crying about a hand hanging in a tree!! He also has been acting up again and doing things that he knows better not to. He also started a new tic...itching his butt! He does it constantly...I have made sure many times it was clean. It is just something he does and we try our best to ignore it. As I was searching the net last night and came across some posts from this board...it HIT ME....MJ was just at the ped last week complaining his ear hurt. The doctor said he has swollen glands because when she felt his throat...he said OUCH! We left there with nothing...she said his ears were fine just some fluid in his ears it was just the start of a cold. At this point he was fine tic wise...no blinking or butt scratching. Last night was a good night sleep wise. I have him Tylenol before bed and he only woke up once to pee. I asked him this morning..."Did you have a good sleep?" He said, "Yes Mommy...I didn't have any bad dreams". I think he was too tired of not sleeping the past few night it finally caught up to him. It breaks my heart. All of you have been going through this longer than me and have experience. Do you think I am in the right place...or does he just have OCD? His ped just feels his some nervous tics that will come and go and he will outgrow them. I appreciate any and all feedback and I apologize that this is so long.